Long COVID with breathlessness, somewhat better after gluten elimination and ADHD treatment
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I'm a 2022 Hauler that go infected during a vacation to visit extended family.
In context ↗ - At worst: Moderate
I started at about 30% and after about 6 months gradually increased to 50%
In context ↗ - Now: Somewhat better
I’m miles better from where I was but currently stuck in a seemingly endless plateau.
In context ↗ - Began after: COVID
I'm a 2022 Hauler that go infected during a vacation to visit extended family.
In context ↗
Read from 9 of their posts and comments; links to the 4 this page draws on
Summary
Around 2022, in his twenties, he caught COVID-19 on a family trip and developed long COVID with breathlessness, balance problems, gut trouble, 12-hour sleeps and deep depression with suicidal thoughts. Returning to work too early set him back; he then improved slowly to about 50% of normal. After a setback costing over a month off work, gluten elimination and ADHD treatment lifted him to about 70%, where he remains stuck on a plateau.
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What they tried
What they credit
Their words about each treatment
- vestibular therapy · Helped
I eneded up doing vestibular therapy that has helped me compensate but my vision is still doing most of the heavy lifting
In context ↗ - sertraline · No change
I was on a low dose of sertraline and it didn’t make much of a difference for me. I got some annoying side effects so I stopped it.
In context ↗ - eliminating a lot of gluten / figuring out food sensitivities · Helped
I changed a ton about my diet and finally treated the ADHD and that helped get me to where I am now.
In context ↗ - getting my ADHD treated · Helped a lot
Getting my ADHD finally treated made the biggest difference for me in terms of cognitive stuff.
In context ↗
Approaches: Diet · Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | COVID-19 on a family vacationI'm a 2022 Hauler that go infected during a vacation to visit extended family.In context ↗ | Moderate | |
| 2022, a few weeks in | deep depression, 12-hour sleeps, barely finishing a work shiftI dove into a deep dark depression. Needing hours dedicated to just rest and recovery every day.In context ↗ | Moderate | |
| about 2 months in | symptoms gradually improved; could walk and stay awake longerfor about 2 months before I noticed any real improvementIn context ↗ | Moderate | |
| about 6 months in | reached about 50% of normalafter about 6 months gradually increased to 50%In context ↗ | Moderate | |
| 2023-2024 | crashed after a hiking tripone huge setback that required a over a month off workIn context ↗ | Moderate | |
| 2024 | diet overhaul and ADHD treatment lifted him to about 70%During that setback I changed a ton about my diet and finally treated the ADHD and that helped get me to where I am now.In context ↗ | Mild | Stimulants (unspecified) |
| 2024-08-11 | working 40 hours a week, plateau at about 70%I’m miles better from where I was but currently stuck in a seemingly endless plateau.In context ↗ | Mild |
Adverse events
- Sertraline (Zoloft)“I was on a low dose of sertraline and it didn’t make much of a difference for me. I got some annoying side effects so I stopped it.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I stupidly tried to return to work and ended up having take more time off.
In context ↗ - Brain fog
Getting my ADHD finally treated made the biggest difference for me in terms of cognitive stuff.
In context ↗ - POTS & dysautonomia
I often felt as though I was walking on a rocking boat on unstable waters.
In context ↗ - Sleep problems
I would work, come home and immediately go to sleep for about 12 hours to barely funciton the next day.
In context ↗ - Gut problems
I think my gut got torched.
In context ↗ - Breathlessness
It was extremely winded beyond anything I had every experienced.
In context ↗ - Anxiety & low mood
I dove into a deep dark depression.
In context ↗
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