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ME/CFS Outcome unclear

ME/CFS crashes with head pressure and joint pain; earbuds helped rest and heat eased pain

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Dec 2022
In their words
  • Condition: ME/CFSActually, they're pretty common amongst CFSers, so you're not alone. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A Reddit user with ME/CFS described crashes with headache, head pressure, reduced thinking capacity and joint and muscle pain. They said noise-cancelling earbuds were the best investment they had made for their health in the last year, blocking noise from a busy road so they could rest properly with shorter breaks. Heat and Voltaren gel eased their pain, and magnesium spray helped a little with muscle aches, while music sometimes lifted their energy but could also make them feel worse.

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What they tried

Also tried

Bose noise cancelling earbuds· Helpedremoving environmental stimulation· Helpedmusic· Helpedheat pack or hot shower· HelpedVoltaren/Nurofen gel· HelpedMagnesium spray· Helpedself-massage and chair massage mat· Helped
Their words about each treatment
  • Bose noise cancelling earbuds · Helpedthe new headphones have fixed that and made so much difference ... my rest breaks can be shorter now In context ↗
  • removing environmental stimulation · HelpedWhat I find most helpful in relieving the brain symptoms as quickly as possible is: removing environmental stimulation In context ↗
  • music · Helpedit's a very helpful tool to have in the toolbox In context ↗
  • heat pack or hot shower · HelpedHeat helps me - either a heat pack or a hot shower if I have enough energy. In context ↗
  • Voltaren/Nurofen gel · HelpedVoltaren/Nurofen gel rubbed into the sorest spots works well but is expensive. In context ↗
  • Magnesium spray · HelpedMagnesium spray helps a little with the muscle aches but not the joint pain In context ↗
  • self-massage and chair massage mat · HelpedSelf-massage also helps me but takes quite a bit of energy. I have a chair massage mat that's good In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
2022-12-08noise-cancelling earbuds made rest possible and rest breaks shorterthe new headphones have fixed that and made so much difference In context ↗
2022-12-14crashes coming on with headache, head pressure, reduced thinking and joint and muscle painYes, this happens to me too as I head in to a crash. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Brain fogI get the symptoms you're describing - headache, pressure in head, reduced thinking capacity In context ↗
  • Pain & fibromyalgiaYes, this happens to me too as I head in to a crash. In context ↗
  • Light & noise sensitivityit can be too much noise stimulation and make me feel worse In context ↗

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