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Long COVID Moderate → somewhat betterIll 2 years before improving or writing

Long COVID with POTS, palpitations and fatigue, now somewhat better but ongoing

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 years
Last post
Sep 2023
In their words
  • Condition: Long COVIDThe vaccine caused my long covid and has ruined my life. In context ↗
  • At worst: Moderatemy legs felt very heavy and my heart rate shoot up to 157 In context ↗
  • Now: Somewhat betterI’m better but not back to normal. ... I still have fatigue, muscle pain and tachycardia. In context ↗
  • Began after: a vaccinationThe vaccine caused my long covid and has ruined my life. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Bramble 93347 was a healthy 35-year-old woman; a second Pfizer dose in June 2021 brought numbness, a heart rate of 157 on standing, palpitations and overwhelming fatigue, and she was diagnosed with POTS. Three months later symptoms were milder but ongoing. A 2022 COVID-19 infection brought fever, and fatigue, muscle pain and tachycardia persisted; in September 2023 she said the vaccine had ruined her life.

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What they tried

Their words about each treatment
  • COVID vaccination as treatment · Not saidI had a bad reaction to the vaccine. ... numbness on my left leg that started to spread up to my face. ... my legs felt very heavy and my heart rate shoot up to 157. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
June 28, 2021Second Pfizer vaccine dose; numbness spreading from leg to face, heart rate 157 on standing, heavy legs, two hospital stays; diagnosed POTSAn hour after, I experienced numbness on my left leg that started to spread up to my face. ... my heart rate shoot up to 157 In context ↗Moderate
2021-10-05symptoms less bad three months after the vaccine reactionIt’s been three months and I’m still experiencing symptoms although not as bad. In context ↗Mild
2022-10-05COVID-19 infection with three days of fever; fatigue, muscle pain and tachycardia remainI had a fever for 3 days. ... I still have fatigue, muscle pain and tachycardia. In context ↗Mild
2023-09-18still says the vaccine caused her long COVID and ruined her lifeThe vaccine caused my long covid and has ruined my life. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingnumbness on my left leg that started to spread up to my face In context ↗
  • Muscle weaknessmy legs felt very heavy In context ↗
  • Heart symptoms & palpitationsI still have fatigue, muscle pain and tachycardia. In context ↗
  • POTS & dysautonomiaI was diagnosed with POTS. In context ↗
  • Anxiety & low moodI’m very frustrated and sad about this. In context ↗

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