Mild ME/CFS, crashing at office job, now somewhat better working from home
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2024
In their words
- Condition: ME/CFS
mild ME that used to be worse as well
In context ↗ - At worst: Mild
I was sacrificing every iota of energy I had to keep up appearances at my office job
In context ↗ - Now: Somewhat better
mild ME that used to be worse as well ... So far I've survived my new schedule without a major crash
In context ↗
Summary
A person with mild ME and fibromyalgia spent every bit of energy keeping up appearances at an office job and gave up performing because it made them crash. Working from home during the pandemic let them sleep well, work, attend a weekly donor function and answer emails from bed the next day. They felt better while pregnant, gave birth without crashing and eight months on was surviving their new schedule without a major crash.
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What they tried
What they credit
Also tried
Their words about each treatment
- working from home · Helped a lot
The pandemic opening up the possibility of working from home most of the time has been an absolute godsend
In context ↗ - yoga · Not said
have enough left over for a yoga class once a week
In context ↗ - epidural · Helped
It allowed me to save all my energy for pushing and to get some actual sleep
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onset, date not given; it was once worse than mildmild ME that used to be worse as wellIn context ↗ | Not stated |
| before the pandemic | Office job taking every bit of energy, nothing left for herself; stopped performing because it made her crashI was the absolute picture of someone who spent all their spoons in the public sphere and had nothing left for themselves at the end of the day.In context ↗ | Mild |
| 2020-05-06 | Working from home in lockdown; sleeping well, more alert, weekly yoga classsix weeks later I'm sleeping well, more alert, doing all my work just fine from homeIn context ↗ | Mild |
| 2022-05-22 | Holding a fundraising job from home, planning one social event a week and resting the next dayI can hold down a job working in fundraising for an arts organizationIn context ↗ | Mild |
| during pregnancy, birth 8 months before February 2024 | Felt better during pregnancy; less chemical sensitivity and fatigueI also felt better during pregnancy, particularly my chemical sensitivity and my overall level of fatigueIn context ↗ | Mild |
| 2024-02-26 | Eight months after childbirth, coping with new schedule without a major crashSo far I've survived my new schedule without a major crashIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can no longer tread the boards as a performer because it makes me crash
In context ↗ - Pain & fibromyalgia
I gave birth 8 months ago with fibro
In context ↗ - Sleep problems
six weeks later I'm sleeping well
In context ↗ - Brain fog
more alert ... a brain in the evenings
In context ↗
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