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ME/CFS Mild → no benefitIll for 6 months

Fatigue and brain fog worsening after mono, with ME/CFS symptoms

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
6 months
Last post
Mar 2018
In their words
  • Condition: ME/CFSI have all of the CFS symptoms except I'd describe my pains as merely mild aches compared to what I read others are experiencing. In context ↗
  • At worst: MildToday I'm having a good day and I feel 50% of my usual self. In context ↗
  • Now: No benefitI just pushed through it for a while, it was 3 months ago that it was absolutely clear to me that I really wasn't okay and it's gotten worse since. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user who had recovered from an episode of infectious mono developed fatigue, constant brain fog and mild aches about five months before February 2018, around September 2017. By February 2018 they had positive EBV early antigen levels, reported all the CFS symptoms and said things were getting worse. In March 2018, on a good day, they rated themselves 50% of their usual self and found that taking things slowly helped.

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What they tried

Their words about each treatment
  • antibiotics · Not saidafter a few weeks and seeing three doctors who all prescribed antibiotics I was in such desperation I went to an ER In context ↗
  • taking everything very slow · HelpedI've taken everything very slow today (which I'm learning does help) In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
around September 2017fatigue and constant brain fog began, months after monoIt actually started around 5 months ago when I noticed I was getting tired early in the day and foggy constantly In context ↗Mild
February 2018clearly unwell and getting worse, feels like mono againit was 3 months ago that it was absolutely clear to me that I really wasn't okay and it's gotten worse since In context ↗Mild
2018-03-16good day, felt 50% of usual self; taking things slowly helpedToday I'm having a good day and I feel 50% of my usual self. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogI was getting tired early in the day and foggy constantly In context ↗
  • Pain & fibromyalgiaI'd describe my pains as merely mild aches compared to what I read others are experiencing In context ↗
  • Flu-like symptomsI've been feeling like I did when I had mono. In context ↗

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