Long COVID with headache, confusion and crashes, somewhat better with pacing and breathing
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 11 months
- Last post
- Apr 2021
In their words
- Condition: Long COVID
After my visit with the Covid Recovery Clinic at St. Paul's Hospital
In context ↗ - At worst: Mild
I’m right there with you going back to work. I have blocked out ‘concussion’ break time into my calendar throughout the day.
In context ↗ - Now: Somewhat better
Ups and downs but overall trending in the right direction.
In context ↗ - Began after: COVID
After my visit with the Covid Recovery Clinic at St. Paul's Hospital
In context ↗
Read from 8 of their posts and comments; links to the 4 this page draws on
Summary
A patient with long COVID fell ill around March 2020 and had headache, confusion, memory loss, dizziness, tinnitus, breathlessness and delayed crashes after exertion. After a Covid Recovery Clinic visit they treated it as a concussion with pacing, graded exercise, meditation, neuroplasticity exercises, niacin and breathing work. They reported more good days than bad by February 2021 and overall positive by April 2021, though relapses continued.
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What they tried
What they credit
Also tried
Their words about each treatment
- NAD+ Nicotinic Acid (niacin) · Helped
Cut your 100mg’s into 4 pieces and take them throughout the day at 2ish hour intervals ... I felt a tangible difference with this
In context ↗ - concussion protocol · Helped
everything I’ve tried in treating this as a concussion has helped.
In context ↗ - pacing · Helped
I’m now working at pacing with a new insight and feel like I can give myself permission to take care of myself.
In context ↗ - graded exercises · Helped
I found a way of increasing my physical strength by doing graded exercises and adding 1 second a day or 1 extra rep a week to things. I started with 3 push-ups and now I’m at 17!
In context ↗ - meditating · Helped a lot
A big difference maker has been meditating in the mornings after my exercises.
In context ↗ - Wif Hof and Stacked Breathing · Helped a lot
I’ve found with the breathlessness that Wif Hof and Stacked Breathing have helped immensely. I do a bit more of a gentle version of his technique as it can exasperate my symptoms if I overdo it.
In context ↗ - Neuroplasticity Exercises · Helped
Another thing that has helped after taking with a phycologist with concussion experience: Neuroplasticity Exercises.
In context ↗ - eye mask and ear protection · Helped
I’ve bought an eye mask and ear protection to completely blank out sound and light. Been trying to take breaks throughout the day doing this.
In context ↗
Approaches: Brain retraining · Mind-body practices · Pacing · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| March 2020 | Long COVID illness onsetMore good days than bad for the first time in 11 months.In context ↗ |
| June 2020 | Seizure-like episodes and tremors in the ERthe seizure like episodes I had in the ER in JuneIn context ↗ |
| January 2021 | Felt tangible improvement after treating it as a concussioneverything I’ve tried in treating this as a concussion has helpedIn context ↗ |
| February 2021 | More good days than bad |
| April 2021 | Overall trending positive but still ups and downsUps and downs but overall trending in the right direction.In context ↗ |
Adverse events
- Meditation, yoga, breathwork“I do a bit more of a gentle version of his technique as it can exasperate my symptoms if I overdo it.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
delayed response of symptoms about 2-3 days after going beyond triggers
In context ↗ - Brain fog
Confusion ... Memory loss ... Difficulty concentrating
In context ↗ - POTS & dysautonomia
Dizziness or imbalance ... Autonomic dysfunction
In context ↗ - Vision problems
Vision disturbances
In context ↗ - Gut problems
Nausea or vomiting
In context ↗ - Tinnitus
Ringing ears/Tinnitus
In context ↗ - Breathlessness
I’ve found with the breathlessness that Wif Hof and Stacked Breathing have helped immensely.
In context ↗
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