Long COVID with POTS and fatigue, improved for 18 months then relapsed
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2.5 years
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I had covid 3 x in 2022; Jan, Aug, Nov and ended up with POTs
In context ↗ - Now: Relapsed
18 months of rarely thinking about it. ... Got really stressed and then a bad virus in june/july 2024 (Australian winter) and the POTs is back in all it’s ridiculous and life altering ways.
In context ↗ - Began after: COVID
I had covid 3 x in 2022; Jan, Aug, Nov and ended up with POTs
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Alpine 97110 caught covid three times in 2022 and developed POTS and post-viral fatigue. By January 2023 antihistamines, rest, electrolytes, vitamin C IVs, B12 and minerals had them living life again for about 18 months. A bad virus after stress in mid-2024 brought the POTS back, and by August 2024 they were still stuck with fatigue, weakness, nausea, brain fog and low mood.
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What they tried
What they credit
Also tried
Their words about each treatment
- Antihistamines · Helped a lot
Antihistamines got me out of it last time, along with rest, electrolytes, IVs of Vit C, B12 injections and replacing minerals.
In context ↗ - somatic therapy · Helped a lot
I second somatic therapy. ... It made such a difference for me that I went and studied it myself.
In context ↗ - gentle work to regulate the vagus nerve · Not said
Doing gentle work to regulate it again
In context ↗
Approaches: H1 antihistamines · POTS medication · Pacing · Supplements · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Jan 2022 | First of three covid infections in 2022; developed POTSI had covid 3 x in 2022; Jan, Aug, Nov and ended up with POTsIn context ↗ | Not stated | |
| Nov 2022 | Lowest point after three covid bouts in 2022after the hell that was 3 bouts of covid in 2022In context ↗ | Moderate | |
| Jan 2023 | Back to living life again for about 18 monthsHowever by Jan 2023 I was pretty good and living life again. ... 18 months of rarely thinking about it.In context ↗ | Near normal | H1 antihistamines (unspecified) |
| June/July 2024 | POTS came back after stress and a bad virusGot really stressed and then a bad virus in june/july 2024 (Australian winter) and the POTs is back in all it’s ridiculous and life altering ways.In context ↗ | Moderate | |
| 2024-08-12 | Still stuck in post-viral fatigue, nausea, brain fog and low mood two months after the virusI’m still stuck in post viral fatigue, weakness, nausea, brain fog, and anxiety/sadness.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
the POTs is back in all it’s ridiculous and life altering ways
In context ↗ - Brain fog
I’m still stuck in post viral fatigue, weakness, nausea, brain fog, and anxiety/sadness.
In context ↗ - Anxiety & low mood
brain fog, and anxiety/sadness
In context ↗ - Gut problems
I have months of fatigue, neuroinflammation and nausea.
In context ↗ - Muscle weakness
I’m still stuck in post viral fatigue, weakness, nausea
In context ↗
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