Long COVID
Mild → somewhat betterIll 5 months before improving or writingNeeds ongoing treatment
Long COVID with brain fog and bladder pain, somewhat better, crediting time
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 5 months
- Last post
- Aug 2023
In their words
- At worst: Mild
I cry all the time, no energy, sometimes I swear I even get minor flu-like symptoms when I over-exert myself at work
In context ↗ - Now: Somewhat better
Thanks for asking actually, I didn't realize that they had mostly gone away
In context ↗ - Began after: COVID
I got COVID in July 2021, and it was pretty rough.
In context ↗
Read from 33 of their posts and comments; links to the 19 this page draws on
Summary
A woman in Florida caught COVID in July 2021 and developed long COVID: breathlessness, brain fog, dizziness, tremors, bladder pain and night-time panic. Famotidine, cetirizine, anxiety medication, CBD and food-trigger avoidance eased symptoms, and she credits time for the bladder improvement. She quit a job over bladder frequency but later worked again; by August 2023 most bladder symptoms had gone, though others came and went.
Ask Miruvor AI
What they tried
Also tried
anti anxiety meds· Helpedomeprazole/pantoprazole and antacids· Helpedincentive spirometer· HelpedIC-friendly/anti-inflammatory/elimination diet· HelpedIC-friendly/anti-inflammatory/elimination diet· Helpedfamotidine (Pepcid AC)· Helpedcetirizine (Claritin/Zyrtec)· Helpedcetirizine (Claritin/Zyrtec)· Helpedguided meditation on Insight Timer· Helpedbotox and some fillers· HelpedCBD· HelpedKratom and Kava· Helpedvery very intentional sleep hygiene· HelpedCold showers· Helpedantibiotics· Worsemulti-vitamin· Not saidliquid magnesium· Not saidLDN· Not said
Their words about each treatment
- anti anxiety meds · Helped
I do take anxiety meds which kinda help, if I could remember to take them daily lol
In context ↗ - omeprazole/pantoprazole and antacids · Helped
I took some omeprazole/pantoprazole for a week and continued to use antacids and that worked for me
In context ↗ - antibiotics · Worse
Antibiotics only destroyed my insides.
In context ↗ - incentive spirometer · Helped
I also was using an "incentive spirometer" which sounds fancy but it's a very simple and cheap device that helps improve lung capacity
In context ↗ - IC-friendly/anti-inflammatory/elimination diet · Helped
the severity of the bladder pain and urgency definitely reduced, and hasn't quite gone up to that level again
In context ↗ - famotidine (Pepcid AC) · Helped
I swear the famotidine helps with the air hunger.
In context ↗ - cetirizine (Claritin/Zyrtec) · Helped
Antihistamine daily helps
In context ↗ - guided meditation on Insight Timer · Helped
I listen to guided meditation on Insight Timer. The gentle voice kind of takes me out of my head and I usually fall asleep or at least feel better
In context ↗ - botox and some fillers · Helped
ended up getting botox and some fillers and I don't regret it a bit
In context ↗ - multi-vitamin · Not said
I just bought a multi-vitamin and some liquid magnesium that I mix 1tbsp. in water once a day.
In context ↗ - CBD · Helped
Also, CBD helped.
In context ↗ - Kratom and Kava · Helped
I actually tried Kratom and Kava for the first time today and it was very mild and chill. I've had no anxiety today which is huge.
In context ↗ - very very intentional sleep hygiene · Helped
very very intentional sleep hygiene. (One coffee per day, no weird foods after a certain time, no scrolling endlessly at night, etc). Doesn't always work but sometimes it does and I can actually sleep!!
In context ↗ - Cold showers · Helped
Cold showers and CBD are definitely helpful!
In context ↗ - LDN · Not said
me being a true alcoholic just kept drinking and drinking because I wasn't getting drunk so it made me sick lol
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| July 2021 | COVID-19 infection, COVID pneumonia, ER visitI got COVID in July 2021, and it was pretty rough.In context ↗ |
| December 2021 | feeling a little better at month 5I'm on month 5 and I am feeling a little better if thatd any hope.In context ↗ |
| 15 January 2022 | quit job over bladder frequency, new job, symptoms mostly manageableLuckily got a new job and my symptoms are mostly manageable now (4 months later)In context ↗ |
| 30 October 2022 | crying all the time, no energy, night-time panic, tremors returnedI've been avoiding her, but I can't suffer anymore.In context ↗ |
| 4 November 2022 | worse again after a better periodI got better, then worse.. right now I'm worse. But hopeful.In context ↗ |
| 6 August 2023 | bladder symptoms mostly gone after finding food triggers and taking a daily antihistamineI didn't realize that they had mostly gone away.In context ↗ |
Adverse events
- Antibiotics (unspecified)“Antibiotics only destroyed my insides.” In context ↗ Gut side effects
- Antidepressants (unspecified)“most anxiety and depression meds make me psychotic and suicidal” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineLoss of smell or tastePOTS & dysautonomiaPost-exertional malaiseSleep problemsVision problems
Their words about their symptoms
- Post-exertional malaise
sometimes I swear I even get minor flu-like symptoms when I over-exert myself at work
In context ↗ - Brain fog
I get brain fog alot too
In context ↗ - POTS & dysautonomia
I had some head pressure in the beginning that worried me and made me dizzy
In context ↗ - Sleep problems
I cannot fall asleep without severe panic/doom/heart racing.
In context ↗ - Headaches & migraine
I had some head pressure in the beginning
In context ↗ - Gut problems
it's also worse when my acid reflux is acting up
In context ↗ - Breathlessness
I had severe shortness of breath for a few weeks.
In context ↗ - Anxiety & low mood
I've had days sometimes weeks of feeling good. Then it comes back
In context ↗ - Loss of smell or taste
I lost my sense of taste/smell
In context ↗ - Vision problems
my vision blurry
In context ↗