Almost entirely bedridden with long COVID, now nearly normal after two Moderna shots
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 months
- Last post
- Jul 2021
In their words
- Condition: Long COVID
I've had some flutters and skipping for about 15 years now, but Covid made them more frequent either directly or indirectly.
In context ↗ - At worst: Severe
When I first got sick, I was out for about 3 weeks and almost entirely bedridden for the first two.
In context ↗ - Now: Near normal
I received the Moderna vaccine and have recovered about 90%.
In context ↗ - Began after: COVID
Covid made them more frequent either directly or indirectly
Read from 9 of their posts and comments; links to the 8 this page draws on
Summary
Trail 79421 was almost entirely bedridden for the first two weeks after getting sick and was ill about six months, with brain fog, breathlessness, headaches, chest pain and palpitations. Going back to work too early caused a crash and another week off; hydration, extra sleep and pacing let them work mostly full time. After two Moderna shots they recovered about 90%, though their heart rate still fluctuated, and by July 2021 felt back to normal physically.
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What they tried
What they credit
Also tried
Their words about each treatment
- hydration (hyper hydration) · Helped
hydration got rid of these specific symptoms. And when I say hydration, I mean like hyper hydration.
In context ↗ - extra sleep, rest breaks and listening to my body · Helped
I have been able to work "mostly" full time now for almost a month just by hydrating like crazy, giving myself a lot of extra time to sleep, and listening to my body.
In context ↗ - Moderna vaccine · Helped a lot
I received the Moderna vaccine and have recovered about 90%. I'm not saying that its a guarantee fix, but in my specific case it did help.
In context ↗ - controlled breathing · Helped
if I controlled my breathing when my heartrate was elevated, it would *eventually* go back down
In context ↗ - slowly reintroducing exercise · Helped
I did try to slowly reintroduce excessive which helps A LOT. I just had to do it slowly.
In context ↗ - time · Helped
I eventually got used to the weird sensations and pain, and I started to be able to relax with time, which helped a lot.
In context ↗
Approaches: POTS medication · Pacing · Physiotherapy and rehab · Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | COVID-19 illness; almost entirely bedridden for the first two weeks, off work about three weeksWhen I first got sick, I was out for about 3 weeks and almost entirely bedridden for the first two.In context ↗ | Severe | |
| 2 mo | went back to work too early, pushed too hard and had to take another week offI quickly found that I was pushing myself too hard the first couple weeks back at work, and eventually got to the point where I had to take off another week to recover.In context ↗ | Moderate | |
| Mid March 2021 | relief began after first Moderna shot; working mostly full time with hydration, extra sleep and rest breaksI started feeling most of my relief from these after my first vaccine shot (Mid March)In context ↗ | Mild | COVID vaccination as treatment |
| May 2021 | symptoms faded after second shot; able to work full time and ride a bike again, about 90% recoveredalmost all of these symptoms slowly started to disappear after the second dose ... I received the Moderna vaccine and have recovered about 90% | Near normal | COVID vaccination as treatment |
| July 2021 | back to normal self physically for a couple of months, with heart rate fluctuations and some anxiety remainingI feel like I've been back to my normal self physically for a couple of months now.In context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“It kicked my ass too. I had some of the most severe symptoms I've had in months. But they were short lived ... the shots royally kicked my a$$ and I was out for 2-3 days after each one.” Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the harder I pushed, the worse my cognitive ability and brain fog got
In context ↗ - Brain fog
poor short term memory, problems with focus and attentiveness
In context ↗ - Heart symptoms & palpitations
my heartrate still fluctuates a bit more than it used to, but it's manageable
In context ↗ - Breathlessness
SOB and headaches followed.
In context ↗ - Anxiety & low mood
Part of me worries if there is any permanent damage I'm not aware of. But that might also just be my anxiety.
In context ↗
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