Condition not stated
Moderate → no benefitIll for 3 years
Poor fragmented sleep for almost three years, no improvement from sleep meds
- Condition
- Condition not stated
- At worst
- Moderate (mostly housebound)
- Ill for
- 3 years
- Last post
- Sep 2023
In their words
- Condition: Condition not stated
As far as I'm aware, I'm not even sure if I actually caught COVID or not ... is long covid a possibility?
In context ↗ - At worst: Moderate
This is ruining my life. I cannot work, I can barely even drive a car most days.
In context ↗ - Now: No benefit
My sleep hygiene has been perfect for years now, but I haven't seen any improvement over the past 3 years.
In context ↗
Summary
A 25-year-old man developed poor, fragmented sleep out of nowhere around January 2021 and woke unrested every day. Almost three years later he had seen 10–15 doctors and tried 7–8 sleep medications without improvement; two sleep studies found no apnoea or narcolepsy, and antihistamines and sleep hygiene did not help. He could not work and could barely drive most days. He was unsure whether he had had COVID, and no treatment improved his sleep.
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What they tried
Also tried
7-8 different sleep medications· No changeRemeron· No changeclonazapam and xanax· No changeclonazapam and xanax· No changesleep hygiene· No changeClaritin· Not saidPepcid· Not said
Their words about each treatment
- 7-8 different sleep medications · No change
I've tried 7-8 different sleep medications (none helped)
In context ↗ - Claritin · Not said
I do take antihistamines regularly, Claritin and Pepcid
In context ↗ - Remeron · No change
Yeah I've taken Remeron at the same dosage, it didn't help me unfortunately.
In context ↗ - clonazapam and xanax · No change
Same thing with benzos, clonazapam and xanax didn't help much at all.
In context ↗ - sleep hygiene · No change
My sleep hygiene has been perfect for years now, but I haven't seen any improvement over the past 3 years.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| January 2021 | poor, fragmented sleep began out of nowhereOut of nowhere around January 2021 I went from having perfect sleep to having poor, fragmented sleep.In context ↗ | Not stated |
| 2023-09-17 | still unrested daily, unable to work and barely able to driveThis is ruining my life. I cannot work, I can barely even drive a car most days.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I wake up feeling completely unrested, every single day, since this has started.
In context ↗ - Temperature regulation
my body is radiating a ton of heat ... I feel like I'm burning up under my blanket, but when I remove my blanket I feel like I'm freezing.
In context ↗ - Pain & fibromyalgia
Neck and Back joint pain
In context ↗ - Neuropathy & tingling
occasional pins and needles/tingling along my upper back and neck
In context ↗