Long COVID with hearing loss, dizziness and fatigue, now 85-90% normal after time and rest
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 6 months
- Last post
- Sep 2023
In their words
- Condition: Long COVID
Covid 12/20, long covid began Jan 1.
In context ↗ - Now: Near normal
at least 85% normal now. Back to working in office and driving etc. Need to work on my exercise though.
In context ↗ - Began after: COVID
Had mild covid symptoms early Dec.
In context ↗
Read from 39 of their posts and comments; links to the 20 this page draws on
Summary
Wave 80316, a woman in her late 40s, caught Covid in December 2020 and developed long Covid on 1 January 2021, with hearing loss, dizziness, nausea, fatigue, brain fog and very high liver enzymes. High-dose prednisone restored most hearing and vestibular rehab helped balance and dizziness, though dizziness worsened again in spring; she credits time, diet and rest. By mid-2021 she was 85-90% normal, working and driving again, though stress still triggers fatigue and cold symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- Medrol dose pack / prednisone · Helped
he prescribed higher dose of prednisone 20mg 3x pd, then step down after a week. That helped hearing.
In context ↗ - vestibular rehab / physical therapy · Helped
Currently in week 3 of vestibular rehab. Improvements in balance ... Round of high dose steroid and PT for vestibular rehab for 2 months seems to be the trick.
- liver friendly diet / diet changes · Helped
I am the diet seems to be helping a lot ... I'm still following a liver friendly diet.
- oatmeal · Helped
Oatmeal helps sometimes.
In context ↗ - exercise / working out · Not said
I've been adding in exercise ... I couldn't pinpoint any 1 thing, rest, exercise, diet, etc.
- migraine medication · Not said
Also had a severe migraine last night that I took my meds
In context ↗ - new vitamin · Helped
bloating is better after beginning a new vitamin.
In context ↗ - ibuprofen · Helped
Took ib this am and keeping fluids in, starting to feel a little better.
In context ↗ - colonoscopy · Helped a lot
Honestly feel like colonoscopy was what helped clear the virus fully.
In context ↗ - Whole30 · Helped
I did a whole30 and that seemed to help.
In context ↗ - rest / pacing · Helped
I believe time, diet changes, rest and good doctors who can run tests to rule out anything else are key.
In context ↗ - COVID vaccination as treatment · Not said
last night was rough. Fever, chills, aches, headache.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2020 | Covid with mild symptomsHad mild covid symptoms early Dec.In context ↗ | Mild | |
| 2021-01-02 | Sudden left-ear hearing loss, labyrinthitis, severe dizziness and severe fatigue; could not do anythingHave not been able to do anything since then.In context ↗ | Moderate | |
| 2021-02 | Hearing coming back on high-dose steroids; vestibular rehab startedMine got better after high dose steroid treatmentIn context ↗ | Moderate | Corticosteroid pulses |
| 2021-03-08 | Relapses: a day or two of feeling normal then crashingI keep having relapses too.In context ↗ | Moderate | |
| 2021-03-27 | Fatigue manageable, adding exercise, still dizzy, working from homeMost of my fatigue is manageable now.In context ↗ | Mild | |
| 2021-04-18 | Dizziness ramped back up after improving with vestibular rehabI went thru vestibular rehab in Jan/Feb and it improved but last 2 weeks it's ramped back up.In context ↗ | Mild | |
| 2021-06-08 | Felt normal again, driving without dizziness, brain fog cleared, back to workIt took 6.5 months bf I felt normalIn context ↗ | Near normal | Time and spontaneous remission |
| 2021-09-22 | Felt more towards normal after 8 monthsI was at 8 months bf I finally felt more towards normal.In context ↗ | Near normal | |
| 2021-12-05 | Stress and overactivity bring back Covid-level fatigue, brain fog and cold symptomsIf I'm stressed or running around alot, my fatigue (covid level) beginsIn context ↗ | Mild | |
| 2022-03-02 | About 90% better than a year before, still building back exerciseI'm at least 90% better than I was a year ago.In context ↗ | Near normal | |
| 2022-05-17 | Covid reinfection, lost weightNow I have covid again and I've lost at least 4 pounds in a week and half.In context ↗ | Not stated | |
| 2023-09-17 | Much better after changing doctors and a full GI work-up with normal resultsMuch better thank you!In context ↗ | Near normal |
Adverse events
- Corticosteroid pulses“fighting the weight gain bc of steroids I had to take in January” In context ↗ Side effects
- COVID vaccination as treatment“last night was rough. Fever, chills, aches, headache.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
If I'm stressed or running around alot, my fatigue (covid level) begins
In context ↗ - Brain fog
I sometimes can't come up with certain words.
In context ↗ - POTS & dysautonomia
I was finally able to drive without dizziness last week
In context ↗ - Heart symptoms & palpitations
Also still have an elevated HR at tomes.
In context ↗ - Gut problems
Still dealing with severe nausea, bloating
In context ↗ - Headaches & migraine
Also had a severe migraine last night
In context ↗ - Flu-like symptoms
multiple times per week I still get a slight sore throat
In context ↗
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