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Long COVID Severe → relapsedIll 5 years before improving or writing

Breathless with long COVID, improved after vaccines then symptoms returned

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
5 years
Last post
Feb 2026
In their words
  • Condition: Long COVIDI am still LC symptoms are not that bad but I still have to plan my days around my LC. In context ↗
  • At worst: Severetaking showers getting dressed up or brushing my teeth were a massive effort. In context ↗
  • Now: RelapsedIt has been five years for me and the general trend is not good at any given time it could get a little better only to get worse. In context ↗
  • Began after: COVIDMy actual COVID infection period I had very mild symptoms. In context ↗
Read from 8 of their posts and comments; links to the 8 this page draws on

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Summary

After mild COVID-19 in December 2020, George became so ill that showering, dressing or brushing their teeth took massive effort, and they could walk only 10-20 feet before losing their breath. They improved around six months in and felt best after each COVID vaccination, yet symptoms kept returning in cycles of a few good days then days or weeks of breathlessness. Five years on, in February 2026, they said the general trend was not good.

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What they tried

Their words about each treatment
  • vaccine shot · Helpedthe best I have ever felt was after each vaccine shot In context ↗
  • CBD · HelpedCBD for day THC for sleep and some fun. They do help with muscle pain In context ↗

Approaches: Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
December 2020COVID-19 with mild acute symptomsMy actual COVID infection period I had very mild symptoms. In context ↗Mild
early 2021after COVID: showering, dressing and brushing teeth took massive efforttaking showers getting dressed up or brushing my teeth were a massive effort In context ↗Severe
2021-02-20some improvement, but breathless after 10 to 20 feetI have improved somewhat and now standing still does not kill me anymore. In context ↗Severe
mid-2021started getting better around six months after the positive resultMine started getting better around six months post positive result. In context ↗Moderate
2021-11-28felt best they ever had after each vaccine shotthe best I have ever felt was after each vaccine shot In context ↗MildCOVID vaccination as treatment
2021-11-28symptoms came back, worse than recently but better than the startRecently some of my symptoms have comeback not as bad as the beginning but still worse than I have been recently. In context ↗Mild
September 2022four days of minimal symptoms after fourth boosterI had four days of minimal symptoms and on the fifth day back to normal (sic) In context ↗MildCOVID vaccination as treatment
2023-04-20symptoms not that bad but still plans days around long COVIDI guess I can say it got better for me but not I have changed since the before times. In context ↗Mild
2026-02-16five years in, general trend not good, winded by the suggestion of effortIt has been five years for me and the general trend is not good In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisedays/weeks of being winded with the suggestion of effort In context ↗
  • BreathlessnessI effort limit now is moving about 10 to twenty feet without loosing my breath. In context ↗
  • Pain & fibromyalgiaThe muscle aches and fatigue is still there. In context ↗
  • Muscle weaknesstaking showers getting dressed up or brushing my teeth were a massive effort In context ↗
  • Sleep problemsCBD for day THC for sleep and some fun In context ↗

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