ME/CFS
No benefit
ME/CFS fatigue, more time in bed and lying down all day, tried GET, CBT and watercress
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Now: No benefit
I rarely have a good day and all of my days are me trying to get back to something that is at least copeable.
In context ↗ - Began after: nothing they could name
I also have a mental illness and had no infection prior to my fatigue.
Read from 36 of their posts and comments; links to the 12 this page draws on
Summary
A woman with ME/CFS since 2011, whose fatigue she called low-level severe and who was spending more time in bed and lying down all day in 2026, rarely having a good day. GET and CBT both went badly. Freeze-dried watercress helped and low-dose mirtazapine gave her a normal sleep pattern, while melatonin stopped suiting her after two years. She put a 30 kg weight gain mostly down to the sleeping aid.
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What they tried
Also tried
Their words about each treatment
- the regular benzo · No change
Before I have tried the regular benzo but it didnt work due to other medication Im taking.
In context ↗ - the birth control pill · Helped
Yes I take the birth control pill continuously because of the periods. ... Also ad Im currently in perimenopause, it helps reducing the symptoms.
In context ↗ - set time schedule for sleep and rest · Helped
I have a set time schedule for sleep. Every night and morning the same time. Also my afternoon rest (in complete dark room) is the same time always.
In context ↗ - GET · Worse
I have tried GET and CBT both didnt work out well.
In context ↗ - mirtazapine · Helped
I take 7.5mg of Mirtazapine an hour before sleep. It helps me sleep in and sleep through.
In context ↗ - Melatonine · Helped
Melatonine worked for a while too, I took it for two yrs (I think the dose was 3mg) and then it started to make me nauseous.
In context ↗ - Puracress or cressanpure · Helped
Puracress or cressanpure helps me. I def notice when I go without like two or three days. Its freeze dried watercress.
In context ↗ - vegan diet · No change
I went vegan two years ago, have cfs for 14 yrs. I noticed no difference in my fatigue
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2011 | fatigue beganIm fatigued since 2011In context ↗ | Mild |
| 2026-01-03 | described her fatigue as low level severe, with PEMI do have PEM and my level of fatigue is low level severe.In context ↗ | Severe |
| 2026-01-28 | spending more time in bed with neck and shoulder painIm spending more time in bed lately and I get these pain in my neck and shouldersIn context ↗ | Severe |
| 2026-05-28 | lying down all day, 30 kg heavier, hair shavedToday 30kg heavier (mostly due sleeping aid), my but is flat, my long hair I had to shave into a buzzIn context ↗ | Severe |
Adverse events
- Mirtazapine (Remeron)“Sadly it enlarges your appetite so I gained weight” In context ↗ Side effects
- Melatonin“then it started to make me nauseous ... After a few years my body rejected it so I had to stop.” Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I do have PEM and my level of fatigue is low level severe.
In context ↗ - Brain fog
Only when Im in a store I feel like I cant focus and after some time chatting I cant think of words anymore
In context ↗ - Sleep problems
I have trouble sleeping in and sleeping through the night
In context ↗ - Pain & fibromyalgia
I get these pain in my neck and shoulders and cant find a good way to lie and read
In context ↗ - Light & noise sensitivity
Portable ac makes too much noise, I cant handle any noise.
In context ↗