ME/CFS
Mild → no benefitIll for 3 years
Three years with ME/CFS, working full time on the razor's edge, no benefit from pills
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- Jan 2021
In their words
- Condition: ME/CFS
even though I'm diagnosed me with ME, I still don't know what exactly I have
In context ↗ - At worst: Mild
Right now I'm on the razor's edge of being able to work a full-time job and that's mostly due to being able to work from home
In context ↗ - Now: No benefit
If anything I feel worse today than I did six months ago
In context ↗ - Began after: nothing they could name
It's been 3 years since I first had symptoms of fatigue/brain fog/etc.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user three years into ME/CFS, diagnosed at Stanford, spent six months on a daily cocktail of CoQ10, acetyl-L-carnitine, curcumin, naltrexone 50 mg and aripiprazole 0.75 mg. They felt worse than before starting it, unsure whether the pills, inactivity or the disease itself was to blame. They were still working full time from home, on the razor's edge of managing, and were ready to give up on the pills.
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What they tried
Also tried
Their words about each treatment
- CoQ10 · Not said
a daily cocktail of CoQ10, Acetyl L-Carnitine, Curcumin, Naltrexone (50mg) and Aripiprazole (Ability) 0.75mg
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2018 | first symptoms of fatigue and brain fogIt's been 3 years since I first had symptoms of fatigue/brain fog/etc.In context ↗ | Not stated |
| 2021-01-22 | six months on a Stanford supplement and drug cocktail, feeling worse than before, still working full-time from homeIf anything I feel worse today than I did six months agoIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
symptoms of fatigue/brain fog/etc.
In context ↗