Long COVID with POTS, brain fog and food reactions, somewhat better on low-histamine diet
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Jun 2022
In their words
- Condition: Long COVID
But here I am with a million long Covid type symptoms and no answers
In context ↗ - At worst: Mild
I can walk no problem, so do lots of that, but have taken a break from any major cardio or weights- don’t seem to do well.
In context ↗ - Now: Somewhat better
Since diet changes my symptoms have become WAY more tolerable. Heart pounding happens if I go rouge off my diet but is still present with any exertion.
In context ↗ - Began after: COVID
I have POTS most likely related to Covid.
- Says they never had: Breathlessness
Zero rashes, no SOB, no allergy/reactions to meds, etc.
Read from 10 of their posts and comments; links to the 6 this page draws on
Summary
A 27-year-old ICU nurse became ill in mid-2021 with a pounding heart, POTS, brain fog and reactions to high-histamine foods, despite a million negative COVID tests. Metoprolol eased her heart rate; she later switched to Corlanor because metoprolol was rough, and a strict low-histamine diet cut her palpitations by half and made her symptoms far more tolerable. Exertion still brought on pounding, so she stopped cardio and weights.
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What they tried
What they credit
Also tried
Their words about each treatment
- metoprolol · Worse
Took metoprolol- worked immediately for HR ... Feeling like shit by now from beta blocker.
In context ↗ - POTS friendly exercise / recumbent exercise · Worse
Tried to attempt recumbent exercise but was having PVC’s at times, terrible heart pounding, couldn’t get anything done.
In context ↗ - Corlanor · Helped
cardiologist switched me to Corlanor bc the metoprolol was rough. Rough transition but happy I did it.
In context ↗ - low histamine diet · Helped a lot
went low histamine diet and my heart pounding cut down by half. Adrenaline surges pretty much disappeared.
In context ↗ - antibiotics · Not said
Had just finished antibiotics that early May, and had been on a ton of Diflucan (antifungal) off and on for the year prior for yeast infection that wouldn't quit.
In context ↗ - Diflucan · Not said
had been on a ton of Diflucan (antifungal) off and on for the year prior for yeast infection that wouldn't quit
In context ↗ - Zyrtec · Helped
Zyrtec also helped when I was really flared up.
In context ↗ - cutting down on carbs and eliminating sugar; zero refined sugar and gluten · Helped
Cutting down on carbs and eliminating sugar was also very helpful.
In context ↗ - vitamin D3 · Not said
Doc has me on vitamin D3 and b12 for my low levels (both levels have improved since).
In context ↗ - magnesium glycinate · Not said
Taking magnesium glycinate daily, sometimes EFA’s.
In context ↗ - liquid IV, water and electrolytes · Not said
Drink a liquid IV everyday- they have b vitamins w/ vitamin C. ... butt ton of water/electrolytes
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| May/June 2021 | Constant fight-or-flight feeling and some brain fog beganMay/June 2021- started to notice i felt like I was in constant fight or flight.In context ↗ | Mild | |
| July 2021 | Full POTS with heart pounding, ER visit for PVCs, abnormal EKGJuly 30- full fledged POTS started. Sitting up in bed HR 115, standing 120, walking to the bathroom 125-130.In context ↗ | Mild | |
| September 2021 | Workout attempt brought on presyncope and heart poundingattempted to workout once CTA was clear- did some bodyweight squats at the end of it and my HR went soring-Presyncope, heart pounding, hella fight or flight. Once I layed down it all stopped.In context ↗ | Mild | |
| December 2021 | Strict low-histamine diet halved heart pounding and stopped adrenaline surgeswent low histamine diet and my heart pounding cut down by half. Adrenaline surges pretty much disappeared.In context ↗ | Mild | Low-histamine diet |
| January-March 2022 | Symptoms far more tolerable on the diet, still pounding with exertionSince diet changes my symptoms have become WAY more tolerable.In context ↗ | Mild | Low-histamine diet |
| 2022-06-25 | Still has palpitations, blood pooling and histamine food reactionsPOTS, intense palpitations (my #1 symptom), the blood pooling in the legs that comes with pots when standingIn context ↗ | Mild |
Adverse events
- Metoprolol (Lopressor, Toprol)“Feeling like shit by now from beta blocker.” In context ↗ Side effects
- Metoprolol (Lopressor, Toprol)“cardiologist switched me to Corlanor bc the metoprolol was rough” In context ↗ Side effects
- Ivabradine“Rough transition but happy I did it.” In context ↗ Side effects
- Antibiotics (unspecified)“Im sure those things didn't help my gut” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
intense palpitations (my #1 symptom)
In context ↗ - POTS & dysautonomia
Have been diagnosed with dysautonomia/POTS
In context ↗ - Brain fog
Some brain fog.
In context ↗ - Mast cell (MCAS) & allergies
reactions to high histamine foods
In context ↗ - Sleep problems
could just feel my pulse legit everywhere in my body it was so intense- couldn’t sleep
In context ↗ - Neuropathy & tingling
Muscle twitching all over randomly ... Tingling in feet when sitting with legs crossed
In context ↗ - Temperature regulation
Cold feet/hands at times
In context ↗ - Anxiety & low mood
the good ole debilitating health anxiety that comes along w/ lol
In context ↗
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