Miruvor
ME/CFS Severe → relapsedBenefit faded or relapsed

Doing well on azythromycin

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
35+ years
Published
Jul 2017

Summary

After 35-plus years of symptoms, including 15 years of joint/back pain and fatigue she likened to ankylosing spondylitis and feeling "half dead with pain and fatigue" going in, took azithromycin 500mg/day for bronchitis and found her joint and back pain "totally gone" within 10 days, only for it to return about 10 days after stopping. She resumed a pulsed regimen (azithromycin 250mg twice daily, 3-4 days a week, plus daily doxycycline) for about four months, reaching stretches of "no muscle pain, no fatigue" with full working days. She discontinued after four months due to accumulating side effects, and by her final post symptoms had returned roughly six weeks after stopping.

Read it in their words

forums.phoenixrising.me

What they credit

Credits Antibiotics, Doxycycline and other antibiotics.

Symptoms mentioned

Symptoms: Pain & fibromyalgia.

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