Long COVID
Mild → no benefitIll for 3 years
Three years of long COVID with pain, numbness and fatigue, nothing helping
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- Oct 2023
In their words
- Condition: Long COVID
i've been suffering for three years now
In context ↗ - At worst: Mild
i don't know how to improve my pain besides light exercise, taking my vitamins and eating healthy
In context ↗ - Now: No benefit
i've been suffering for three years now ... i don't think i can keep going like this
In context ↗ - Began after: nothing they could name
i used to think my neuropathy was the cause of all my symptoms but now i believe that it's a symptom of something else
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 24-year-old woman had been ill for three years with pain, weakness, numbness, burning skin, headaches, blurry vision, hives, temperature dysregulation and constant fatigue, plus small fiber neuropathy and fibromyalgia. Hydroxyzine, amitriptyline, gabapentin, pregabalin, IVIG and muscle relaxers had not helped her bladder or nerve symptoms; light exercise, vitamins and a healthy diet left her feeling no different.
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What they tried
Also tried
hydroxyzine· No changeamitriptyline· No changegabapentin· No changepregablin· No changeIVIG infusions· No changemuscle relaxers· No changelight exercise· No changemy vitamins· No changeeating healthy· No changean antibiotic· Not said
Their words about each treatment
- an antibiotic · Not said
i take an antibiotic atleast every month and it’s been that way since 2017
In context ↗ - hydroxyzine · No change
i’ve tried hydroxyzine, amitriptyline, gabapentin, pregablin, IVIG infusions, muscle relaxers and nothing seems to help
In context ↗ - light exercise · No change
i don’t know how to improve my pain besides light exercise, taking my vitamins and eating healthy but i don’t feel any different
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2020 | onset of pain, numbness, weakness, burning skin and fatiguei've been suffering for three years nowIn context ↗ | Not stated |
| 2023-10-10 | still unwell on light exercise and vitamins, waiting on a pain clinic appointmenti don't think i can keep going like thisIn context ↗ | Mild |
Symptoms mentioned
Gut problemsHeadaches & migraineMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPain & fibromyalgiaTemperature regulationVision problems
Their words about their symptoms
- Pain & fibromyalgia
i have pain, muscle weakness, numbness, pins and needles, burning skin
In context ↗ - Muscle weakness
muscle weakness, numbness, pins and needles
In context ↗ - Neuropathy & tingling
i have small fiber neuropathy
In context ↗ - Temperature regulation
difficulty managing temperatures (everyone could be feeling hot and i'll be the only one in the room feeling cold)
In context ↗ - Headaches & migraine
headaches, constant fatigue
In context ↗ - Gut problems
i have small fiber neuropathy, gerd, adenomyosis, interstitial cystitis
In context ↗