Long COVID: barely able to walk, now somewhat better on diet changes and Zyrtec
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Nov 2021
In their words
- Condition: Long COVID
I think I’m dealing with long covid
In context ↗ - At worst: Moderate
Also hard to walk to mailbox currently (sept 14th) because of heart rate and shortness of breath
In context ↗ - Now: Somewhat better
I’m on month 6 and am having good and soso days still not close to normal but hoping I’ll get there soon
In context ↗ - Began after: COVID
feel as tho the symptoms I am experiencing are from covid and I am a long hauler
Read from 16 of their posts and comments; links to the 10 this page draws on
Summary
A 22-year-old man fell ill in May 2021 after a golf trip with severe nausea, diarrhoea and headaches, then acid reflux, brain fog, panic attacks and POTS-like heart rate spikes; by mid-September he could barely walk to his mailbox. A gluten- and dairy-free diet plus Zyrtec and Pepcid brought his appetite back about 90% and cleared his nausea and reflux, and his brain fog eased about 90%. By November he had good and so-so days, not close to normal.
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What they tried
What they credit
Also tried
Their words about each treatment
- gluten free and dairy free · Helped
I cut out gluten and dairy and it helped a lot and then started taking Pepcid/Zyrtec
In context ↗ - Zyrtec · Helped
started taking Zyrtec and Pepcid and my appetite returned about 90%
In context ↗ - panproprazole · Worse
Took panproprazole for 15 days made me feel worse tbh
In context ↗ - anti inflammatory diet · Not said
taking Zyrtec in AM Pepcid at night eating anti inflammatory diet
In context ↗ - cold showers · Helped
Recently started ending my showers with 2 mins of coldest it will go and believe it has been helping
In context ↗ - supplements and vitamins · Not said
they are gonna put me on abunch of supplements vitamins and fish oil
In context ↗ - fish oil · Not said
started taking fish oil and some other supplements my doc proscribed
In context ↗ - staying hydrated · Helped
But I’d say the biggest thing was being able to eat after taking the Pepcid and zyrtec and staying hydrated.
In context ↗
Approaches: H1 antihistamines · H2 blockers · POTS medication
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| May 2021 | sudden severe nausea, headache and diarrhoea after a golf tripWeek later out of nowhere have severe nausea headache diarrhea for 3 daysIn context ↗ | Not stated | |
| 2021-09-14 | POTS-like heart rate spikes, breathlessness, could barely walk to the mailboxAlso hard to walk to mailbox currently (sept 14th) because of heart rate and shortness of breathIn context ↗ | Moderate | |
| 2021-09-17 | started feeling a little better day by day, heart rate slowly coming downI’m feeling alittle better day bu day taking Zyrtec in AM Pepcid at night eating anti inflammatory diet. Heart rate has been slowly going down everyday walking around.In context ↗ | Mild | Cetirizine (Zyrtec) |
| 2021-09-27 | brain fog about 90% gone, nausea and acid reflux gone3 weeks ago couldn’t watch tv or focus for more than 2 minutes at a time now Im feeling my brain fog is 90% goneIn context ↗ | Mild | |
| 2021-11-17 | good and soso days, still not close to normalI’m on month 6 and am having good and soso days still not close to normal but hoping I’ll get there soonIn context ↗ | Mild |
Adverse events
- “Took panproprazole for 15 days made me feel worse tbh” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Gut problems
severe nausea headache diarrhea for 3 days
In context ↗ - Brain fog
Im feeling my brain fog is 90% gone
In context ↗ - POTS & dysautonomia
heart rate shoots up when I stand from 65-140 bpm
In context ↗ - Heart symptoms & palpitations
wake up middle of the night Heart racing feeling dizzy
In context ↗ - Anxiety & low mood
start experiencing panic attacks with a rapid heart beat
In context ↗ - Breathlessness
shortness of breath dizziness loss of balance fatigue and tight throat
In context ↗ - Tinnitus
have brain fog mild tinnitus every now and then
In context ↗
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