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Long COVID Severe → near normalIll 9 months before improving or writingNeeds ongoing treatment

Housebound with long COVID, now nearly back to normal after brain retraining and walking

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
9 months
Last post
Jun 2026
In their words
  • Condition: Long COVIDIm about 90 percent recovered from long covid as well so from like 30-40 symptoms down to like 5. In context ↗
  • At worst: SevereI was couch/ bedridden for few months during this time i would go on walks daily and started slowly. In context ↗
  • Now: Near normalIm like you i recovered to about 90 percent, i partied all day 9 months later and still live my life as a normal person. ... Most my issues now are gut-brain related and mostly to foods In context ↗
Read from 43 of their posts and comments; links to the 23 this page draws on

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Summary

Hawk 30838 caught COVID in August 2023 and crashed in February 2024 with insomnia, adrenaline rushes and brain fog, becoming couch- and house-bound and off work for 2.5 months. They credit brain retraining, daily walking and living normally, later gut work with peptides, for reaching about 90-95% recovered, working full time and back in the gym, though twitching and food-related gut issues remained.

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What they tried

Their words about each treatment
  • mirtazapine · No changeI take mirtazapine a small dose of 2mg, i would say that didnt work In context ↗
  • Ativan · HelpedI dont use ativan any more but initially it helped get me thru the night. In context ↗
  • brain retraining · Helped a lotBrain retraining got me at 80 percent, i had crashes for few days if to much activity. In context ↗
  • walking and daily activity · Helpedthen a mile and then up to 3 miles daily within 2 months i built up to this. I was super exhausted but i just kept pushing. In context ↗
  • eating healthy · No changeI try eating healthy for a while but didn’t make a change In context ↗
  • supplements · WorseSupplements made me worse. In context ↗
  • 4-7-8 breathwork · HelpedI did 4-7-8 breath work a lot like 5-10 times a day, 5 mins at a time to relax the nervous system if i got overwhelmed. In context ↗
  • sleep school on YouTube · HelpedThe sleep school on YouTube helped me alot. In context ↗
  • peptides · HelpedI also improved by focusing on healing the gut with peptides. ... i am down to 1 or none which is normal after peptides. In context ↗

Approaches: Brain retraining · Exercise and activity · Peptides

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo2 y2.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
January 2024daily headaches and muscle twitches startedi was still Functioning until January when i developed daily headaches and muscle twitches In context ↗Mild
February 2024crashed with insomnia, adrenaline rushes, brain fog and anxiety; housebound, off workEverything got extremely bad in feb, i developed insomnia with non stop adrenaline rushes, brain fog and many more symptoms. In context ↗Severe
spring 2024started daily walks and brain retraining, built to 3 miles a dayi started walking a block, then a mile and then up to 3 miles daily within 2 months i built up to this. I was super exhausted but i just kept pushing. In context ↗Mild
mid May 2024returned to work with uncomfortable symptomsMy goal was to get back to work which i did with very uncomfortable symptoms in mid May. In context ↗Mild
mid June 2024lost the fear and shifted mindsetI lost the fear in mid June and decided that if i was going to heal i needed to believe and shifted my mindset. In context ↗Mild
August 2024about 60% recoveredIm also like 60 percent recovered but nerves hyperactivity is my most common symptom. In context ↗Mild
August 2024relapse after wife caught COVID: derealization, dizzinessi relapse when my wife caught covid 3months ago, it was bad for me. Super bad derealization and symptoms really bad. In context ↗Moderate
September 2024about 80% better except twitchingIm about 80 percent better except the twitching. In context ↗Mild
November 2024working full time, no crashes, can work outnow im at the point where i work full time and do almost everything normal i still have daily uncomfortable symptoms but i dont crash, i can workout. In context ↗Near normal
February 202590-95%, PEM gone, back to work and gymIm about 90-95 percent and the symptoms i have now are just minor and slowly disappearing. In context ↗Near normal
May 2025four days of partying at a festival, no longer crashingI just went to Edc in las vegas did 4 days of drinking and walking and partying. Pretty much recovered In context ↗Near normal
December 2025about 95% recovered, still slowly improving; found h pyloriI am about 95 percent recovered after 2years slightly improving every month. In context ↗Near normal
January 2026improving further after working on the gut with peptidesI have been improving alot ever since i started working on my gut In context ↗Near normalPeptides (unspecified)
June 2026about 90% recovered, living a normal life; remaining gut-related issuesi recovered to about 90 percent, i partied all day 9 months later and still live my life as a normal person. In context ↗Near normal

Adverse events

  • “meds made me worse” In context ↗ Made symptoms worse
  • “Supplements made me worse.” In context ↗ Made symptoms worse
  • “its so uncomfortable going thru die off but definitely worth it in the end” In context ↗ Herx / die-off reaction

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseMy pem disappeared 2-3 months after starting this process In context ↗
  • Brain fogi still have some symptoms but not dpdr or brain fog In context ↗
  • POTS & dysautonomiaPots( for about 2 weeks ) In context ↗
  • Sleep problemsi developed insomnia with non stop adrenaline rushes In context ↗
  • Gut problemsMost my issues now are gut-brain related and mostly to foods In context ↗
  • Light & noise sensitivityi also had noise sensitivity which lasted about the same In context ↗
  • Anxiety & low moodMy anxiety got really bad In context ↗
  • Flu-like symptomsIm at the point where that fever feeling is leaving me In context ↗
  • Vision problemsnoise sensitivity and eye with blurry vision In context ↗

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