ME/CFS
Mild → near normalIll 1 year before improving or writing
ME/CFS with fatigue and joint pain, now almost back to normal with near-100% energy
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Apr 2019
In their words
- Condition: ME/CFS
My doctor danced around CFS but was reluctant because he (rightly) wanted to rule out more treatable conditions.
In context ↗ - At worst: Mild
The fatigue was so bad at times that I would nearly pass out at work (I work in a law office).
In context ↗ - Now: Near normal
the symptoms have continued to dissipate - although I'm left with some kind of escutcheon tube dysfunction
In context ↗
Summary
Bluebell 99023 became ill in 2018 with fatigue, unrefreshing sleep, joint pain, headaches, concentration loss and enlarged lymph tissue, but kept working in a law office and nearly passed out at times. After about a year the symptoms improved substantially, leaving near-100% energy and a return to the gym four days a week, with minimal joint pain and lymph swelling. Two weeks later symptoms were still dissipating, but a loud-sound ear distortion remained.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about March 2018 | cluster of symptoms beganOne year and a month ago I came down with a cluster of symptoms for which we have found no obvious cause.In context ↗ | Mild |
| about March 2019 | symptoms improved substantially; back to near 100% energy and gym four days a weekAs of a month ago, my symptoms have finally improved substantially. I'm back to near 100% of my original energy levels.In context ↗ | Near normal |
| 2019-04-22 | symptoms continued to dissipate; left with ear distortionthe symptoms have continued to dissipate - although I'm left with some kind of escutcheon tube dysfunctionIn context ↗ | Near normal |
Symptoms mentioned
Brain fogFlu-like symptomsHeadaches & migrainePOTS & dysautonomiaPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Brain fog
Loss of concentration
In context ↗ - POTS & dysautonomia
in the earliest days I had intense vertigo
In context ↗ - Vision problems
My field of vision would slowly go dark at the periphery and narrow down to a pinpoint.
In context ↗ - Sleep problems
I'd sleep for 9-10 hours and feel like I hadn't slept at all
In context ↗ - Pain & fibromyalgia
minimal joint pain (down to about 10% of its peak)
In context ↗ - Flu-like symptoms
minimal lymph swelling (down to about 10% of what it was)
In context ↗