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Long COVID Moderate → somewhat betterIll 4 months before improving or writing

Long COVID aches so bad they couldn't walk, now somewhat better with antihistamines

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
4 months
Last post
Sep 2026
In their words
  • Condition: Long COVIDthe drs keep saying this can happen after covid In context ↗
  • At worst: Moderatemy legs were soo sore I couldn’t even walk In context ↗
  • Now: Somewhat betterAntihistamines have been helping but not 100%. ... It’s been 4.5 months now and I still have symptoms. In context ↗
  • Began after: COVIDthe drs keep saying this can happen after covid In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Valley 81903 fell ill in May with extreme fatigue, leg swelling and bruising, hives, tingling and numbness, a racing heart and muscle aches so severe they could not walk; COVID tests were negative. A sinus infection came in between. Four and a half months on they still feel tired with sore muscles, and antihistamines help but not fully. They were too scared to try the SSRIs a doctor suggested.

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Asking aboutValley 81903’s story

What they tried

Their words about each treatment
  • Antihistamines · HelpedAntihistamines have been helping but not 100%. In context ↗

Approaches: H1 antihistamines

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
Maypost-viral illness: extreme fatigue, leg swelling and bruising, hives, tingling and numbness, racing heart, muscle aches so severe they could not walkmy legs were soo sore I couldn’t even walk In context ↗Moderate
4.5 months instill tired with sore muscles; antihistamines helping but not fullyAntihistamines have been helping but not 100% ... I feel tired and my muscles are still sore. In context ↗MildH1 antihistamines (unspecified)

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaCrazy muscle aches, my legs were soo sore I couldn’t even walk In context ↗
  • Neuropathy & tinglingtingling and needles and pins feeling, numbness In context ↗
  • Mast cell (MCAS) & allergiesWeird hives and bruising on my legs In context ↗
  • Heart symptoms & palpitationsMy heart would start racing as if I was having asthma or like a panic attack In context ↗

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