ME/CFS
No benefitIll for 20 years
ME/CFS since childhood with constant pain, no improvement reported
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 20 years
- Last post
- Jul 2021
In their words
- Condition: ME/CFS
I've had CFS Since I was a child.
In context ↗ - Now: No benefit
My health has increasingly gotten worse over time
In context ↗ - Began after: a bacterial or tick-borne infection
I had a long undiagnosed untreated bout of Lyme's disease when I was 7.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Dune 27182 says they have had CFS since childhood, after an untreated bout of Lyme disease at age 7; they were 27 when writing and their health has worsened over time. A lot of days bring constant pain, with throbbing bone and nerve pain on their right side, though some days are completely pain free; they manage life with spoons and lists. They had cancer in 2016 and 2020, and three pregnancies each made their body worse. No treatment or improvement is reported.
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What they tried
Also tried
Their words about each treatment
- spoons and lists · Helped
I use spoons and lists to make my life managable
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| age 7 | CFS began after untreated Lyme disease at age 7I had a long undiagnosed untreated bout of Lyme's disease when I was 7. I was never the same after.In context ↗ |
| 2021-07-20 | health has worsened over time; constant pain many daysMy health has increasingly gotten worse over time I'm 27 now.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
A lot of days I'm in constant pain.
In context ↗ - Neuropathy & tingling
My right side throbs and pulses with bone and nerve pain.
In context ↗