Long COVID crashes and 12-hour sleep needs somewhat better with L-lysine and monolaurin
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2024
In their words
- Condition: Long COVID
Still suffering from long haul symptoms (dysautonomia, fatigue, etc)
In context ↗ - At worst: Moderate
I no longer need to sleep 12 hours every day
In context ↗ - Now: Somewhat better
Still suffering from long haul symptoms (dysautonomia, fatigue, etc), but treating EBV made a BIG difference for me.
In context ↗ - Began after: COVID
Still suffering from long haul symptoms
Summary
They had long COVID with dysautonomia, fatigue, crashes and needed 12 hours of sleep a day. Three months of L-lysine and monolaurin resolved their EBV reactivation, after valacyclovir caused bad headaches; crashes improved and they no longer needed 12 hours of sleep, but dysautonomia and fatigue persisted. By October 2024 they reported more headache, extreme fatigue, joint inflammation, high mucus and brain fog.
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What they tried
What they credit
Also tried
Their words about each treatment
- valacyclovir · Worse
originally tried valacyclovir but got bad headaches as a side effect so switched
In context ↗ - L-lysine · Helped
I did 3 months of L-lysine and monolaurin ... treating EBV made a BIG difference for me
In context ↗
Approaches: Amino acids and carnitine · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | long COVID with dysautonomia, fatigue and crashesStill suffering from long haul symptoms (dysautonomia, fatigue, etc)In context ↗ | Moderate |
| before 2023-12-17 | needed 12 hours of sleep daily and had crashesI no longer need to sleep 12 hours every day, and my crashes are much betterIn context ↗ | Moderate |
| 2023-12-17 | EBV reactivation resolved; sleep need and crashes improvedtreating EBV made a BIG difference for me. I no longer need to sleep 12 hours every day, and my crashes are much betterIn context ↗ | Mild |
| 2024-10-06 | increase in symptoms: headache, extreme fatigue, joint inflammation, mucus, brain fogBasically an increase in my symptoms - headache, extreme fatigue, inflammation in some joints, high mucus production, brain fog.In context ↗ | Mild |
Adverse events
- Valtrex / valacyclovir“originally tried valacyclovir but got bad headaches as a side effect so switched” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my crashes are much better
In context ↗ - Sleep problems
I no longer need to sleep 12 hours every day
In context ↗ - Pain & fibromyalgia
inflammation in some joints
In context ↗
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