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ME/CFS Outcome unclear

ME/CFS concentration trouble and painful payback after caffeine, trying protein meals

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jul 2020
In their words
  • Condition: ME/CFSThe lack of thinking and concentrating ability is truly terrible isn’t it. In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

A Reddit user on r/cfs described trouble thinking and concentrating and a painful payback after using caffeine for a short burst of energy when they needed to push themselves. They passed time with audiobooks and nature sounds, found protein-rich meals energising when they limited simple carbs but needed carbs to get through a crash, and added juice and a pinch of salt to their drinks. They described only small everyday measures.

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What they tried

Their words about each treatment
  • caffeine · WorseI get this effect with caffeine but only for half an hour. I call it false energy as there’s always a payback and it’s usually painful but I still use it occasionally when I need to push myself. In context ↗
  • protein rich meals, limiting simple carbs · HelpedI find protein rich meals much more energising especially if I limit simple carbs. In context ↗
  • juice in drinks and a tiny pinch of salt · HelpedAlso adding a tiny pinch of salt in each drink helps a little. In context ↗
  • Heat therapy (heating pads, heat packs) · Not saidjust don’t fall asleep with them on high as you wake up feeling very sick In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogThe lack of thinking and concentrating ability is truly terrible isn’t it. In context ↗
  • Post-exertional malaiseIf I’ve crashed though I find I need mainly carbs to get me through it. In context ↗
  • Pain & fibromyalgiathere’s always a payback and it’s usually painful In context ↗

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