Long COVID dizziness and gut symptoms, 70% better on antihistamines and diet, then relapsed
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Aug 2025
In their words
- Condition: Long COVID
My doc just officially diagnosed me with Long Covid
In context ↗ - At worst: Severe
I can't finish a sentence, read an email, take a shower - really do anything but LAY ABOUT
In context ↗ - Now: Relapsed
I'm 70% better than I was 6 months ago ... I can't finish a sentence, read an email, take a shower - really do anything but LAY ABOUT
- Began after: COVID
Started mildly after first bout of covid 1.5 years ago
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Glade 48905 has been ill for about 3.5 years, linking it to COVID and black mould exposure, with dizziness, cognitive impairment, constant gut symptoms and nerve pain, worsened by a later COVID infection. Antihistamines, magnesium, B vitamins, a low-histamine diet and months off work left her about 70% better by mid-2024, able to attempt an errand again. By 2025 she was dizzy again, rarely leaving the house, and by August 2025 could do little but lie down. She says she has spent her savings chasing treatments.
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What they tried
What they credit
Also tried
Their words about each treatment
- liquid potassium salt · Helped
I've recently had relief from neuro symptoms by taking A LOT of liquid potassium salt
In context ↗ - a probiotic · Helped
I've recently had relief from neuro symptoms by taking A LOT of liquid potassium salt, a probiotic
In context ↗ - B1 · Helped
B1 (great for neuropathy) ... Mega doses of Magnesium and B1 + low histamine diet have helped a lot
- Magnesium (Mag Threonate) · Helped
Mega doses of Magnesium and B1 + low histamine diet have helped a lot
In context ↗ - Anti-histamines (Allegra) · Helped
Anti-histamines, magnesium and a bunch of other stuff has helped ... Pepcid AND Allegra
- taking several months off of work · Helped
Anti-histamines, magnesium and a bunch of other stuff has helped (including taking several months off of work)
In context ↗ - natural protocol · Not said
High H Pylori (I tried natural protocol then took antibiotics)
In context ↗ - antibiotics · Not said
I tried natural protocol then took antibiotics
In context ↗ - Low Dose Naltrexone · Helped
Low Dose Naltrexone - a very low dose.
In context ↗ - electrolyte powder · Helped
Lots of Magnesium, electrolyte powder, getting my D, B12 and Iron sorted.
In context ↗ - D · Helped
getting my D, B12 and Iron sorted
In context ↗ - Pepcid · Helped
Pepcid AND Allegra.
In context ↗ - Cromylyn (oral) · Helped
am taking Cromylyn (oral), which helps w energy levels
In context ↗ - low dose GLP1 · Not said
My doc just officially diagnosed me with Long Covid and is putting me on a low dose GLP1
In context ↗
Approaches: H1 antihistamines · H2 blockers · POTS medication · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID began mildly after a first COVID infectionStarted mildly after first bout of covid 1.5 years agoIn context ↗ | Mild | |
| early 2024 | cognitively impaired, dizzy and barely able to functionI've been cognitively impaired, dizzy and sick as a dog for the last 3.5 years.In context ↗ | Severe | |
| July 2024 | about 70% better, able to attempt errands again after four weeks without dizzinessI'm 70% better - Anti-histamines, magnesium and a bunch of other stuff has helped (including taking several months off of work).In context ↗ | Moderate | Fexofenadine (Allegra) |
| May 2025 | dizzy for so long they rarely leave the houseI have been dizzy for so long I rarely leave the house - and am scared to even go on a walk.In context ↗ | Moderate | |
| August 2025 | unable to finish a sentence, read an email or showerI can't finish a sentence, read an email, take a shower - really do anything but LAY ABOUT.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have been dizzy for so long I rarely leave the house
In context ↗ - Brain fog
I can't finish a sentence, read an email, take a shower
In context ↗ - Gut problems
my GI symptoms are off the charts - constant
In context ↗ - Neuropathy & tingling
Nerve damage, constant pins and needles
In context ↗ - Anxiety & low mood
I am so afraid to leave the house.
In context ↗ - Mast cell (MCAS) & allergies
I have MCAS (sounds like you might too)
In context ↗
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