Month-long homebound crashes, now ME/CFS with PEM and exercise intolerance
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 9 months
- Last post
- Jul 2024
In their words
- Condition: ME/CFS
now I believe I have CFS because I never had the same type of crashes before I got the C virus.
In context ↗ - At worst: Severe
The worst part of the crashes (homebound) so far have lasted about a month each.
In context ↗ - Now: No benefit
this crash has been going on for three weeks now
In context ↗ - Began after: COVID
I contracted the C virus in October and thought I had recovered
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user who caught the C virus in October and then had three severe, month-long homebound crashes, the latest going on three weeks when they posted in July 2024. They now recognise ME/CFS, with new PEM, exercise intolerance, palpitations, poor sleep and sensory sensitivity, on top of long-standing PAWS from a Cymbalta taper they could not complete. They describe overexertion during a stressful home renovation and fear their baseline has worsened, and are unable to travel to far appointments.
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What they tried
Also tried
Their words about each treatment
- Cymbalta · Not said
I’ve been holding on the same dose for 4 or 5 years now and have been scared to make any more changes for fear of worsening symptoms
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| October 2023 | COVID-19 infection, thought recoveredI contracted the C virus in October and thought I had recoveredIn context ↗ | Not stated |
| December 2023 | first severe crash, homebound about a monthhaving a crash for December, March, and this crash has been going on for three weeks nowIn context ↗ | Severe |
| March 2024 | second severe crash during stressful home renovationThe worst part of the crashes (homebound) so far have lasted about a month each. After October a very stressful renovation was going on at my home which didn't end until MarchIn context ↗ | Severe |
| June 2024 | third severe crash, going on three weeks, homeboundthis crash has been going on for three weeks nowIn context ↗ | Severe |
| 2024-07-05 | homebound, terrified, seeking adviceI am unable in the state I am in to travel to far appointmentsIn context ↗ | Severe |
Adverse events
- Duloxetine (Cymbalta)“Post Acute Withdrawal Syndrome (PAWS) which I have been struggling with for the last 5 years from a Cymbalta taper which I was unable to complete due to the severity of my symptoms.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I now have PEM which I didn’t have before
In context ↗ - POTS & dysautonomia
heat intolerance (feel dizzy and get really sick and hot if it’s over 22 degrees), dizziness
In context ↗ - Sleep problems
sleeping for 14 hours a day and needing to nap for another 2 hours
In context ↗ - Headaches & migraine
nausea, headache
In context ↗ - Light & noise sensitivity
light and sounds sensitivity, touch sensitivity
In context ↗ - Heart symptoms & palpitations
bad palpitations and tachycardia
In context ↗ - Muscle weakness
Feeling very floppy
In context ↗ - Neuropathy & tingling
muscle rigidity and twitches
In context ↗ - Brain fog
inability to focus
In context ↗ - Temperature regulation
poor temperature regulation, nightmares, night sweats
In context ↗