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ME/CFS Moderate → somewhat betterIll 2.5 years before improving or writing

Unable to work with ME/CFS, now somewhat better after magnesium and St John's wort

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill before improving or writing
2.5 years
Last post
Feb 2024
In their words
  • At worst: ModerateI could not work anymore. I could not consume any caffeine. I could not eat again. In context ↗
  • Now: Somewhat betterIn December 2023 I started a 6 week John’s wort healing procedure, which helped a lot with my anxiety. In context ↗
  • Began after: another virusIn December 2020 I was sick again - looked like covid but my test (it was a covid blood test, one of the first ones, so I do not know about it) was negative.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Pond 70118 fell ill in 2020 after a sore throat and a covid-like illness, with extreme tiredness and crawling/numb sensations in hands and feet; nausea, panic attacks and anxiety began at the end of 2022. They lost over 10kg. Magnesium injections in early 2023 helped them eat a bit again, and St John's wort in December 2023 helped a lot with anxiety. By autumn 2023 they could not work anymore, and in early 2024 were on a liver detox with NAC and milk thistle.

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What they tried

Their words about each treatment
  • Magnesium · Not saidI was recommended to take Magnesium And B-complex daily. In context ↗
  • adaptogens (Maca, Rhodiola Rosea, Moringa) · Not saidI was using adaptogens daily. Either Maca or Rhodiola Rosea, and at the end of 2022 it was Moringa. In context ↗
  • iron · Not saidI was prescribed iron, Magnesium And B injections. In context ↗
  • Magnesium injections · HelpedThose Magnesium injections really helped me. I started to eat a bit again And felt slightly better, not healed though. In context ↗
  • B injections · Worsetogether with B it was too much for me, so I had only the Magnesium applied In context ↗
  • SSRI · WorseI only took half of the SSRI pill but my anxiety went crazy, also the appetite loss and heartbeat were crazy bad. In context ↗
  • John’s wort · Helped a lotIn December 2023 I started a 6 week John’s wort healing procedure, which helped a lot with my anxiety. In context ↗
  • NAC · Not saidCurrently I am on a liver detox - NAC + Milk thistle, artichoke, dandelion extract, since the end of December 2023 In context ↗
  • Milk thistle, artichoke, dandelion extract · Not saida liver detox - NAC + Milk thistle, artichoke, dandelion extract, since the end of December 2023 (should last 8 weeks) In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
summer 2020sore throat, health problems beganin summer 2020 my throat sore and I needed to buy a spray for it In context ↗Mild
December 2020sick again with a covid-like illness, then extreme tiredness and appetite lossIn December 2020 I was sick again - looked like covid but my test ... was negative. Afterwards, I completely lost my appetite and started to feel extreeemely tired. In context ↗Mild
winter / spring 2022symptoms got worse again, saw a neurologist and had an MR scanIn winter / spring 2022 my symptoms got worse again and I finally visited a neurologist and was sent to MR screening. In context ↗Mild
summer and autumn 2022health got better over the summer and autumn while taking adaptogens dailyEventually my health conditions got better again, mostly during the summer and autumn 2022. ... I was using adaptogens daily. In context ↗Mild
end of 2022first panic attack, then constant nausea and anxietyI think it was the first panic attack ... From this day I felt nauseous all the time and started to have panic attacks almost everywhere And with it even anxiety appeared. In context ↗Mild
beginning 2023magnesium injections; started eating a bit againThose Magnesium injections really helped me. I started to eat a bit again And felt slightly better, not healed though. In context ↗MildMagnesium
April 2023panic attacks struck againIn April the panic attacks striked again! In context ↗Mild
beginning of autumn 2023nervous system collapsed; could not work, tolerate caffeine or eatBeginning autumn, my nervous system collapsed totally. I could not work anymore. I could not consume any caffeine. I could not eat again. In context ↗Moderate
December 2023St John's wort procedure helped anxiety a lotIn December 2023 I started a 6 week John’s wort healing procedure, which helped a lot with my anxiety. In context ↗MildSt John's Wort
2024-02-08on a liver detox after the St John's wort courseCurrently I am on a liver detox - NAC + Milk thistle, artichoke, dandelion extract, since the end of December 2023 (should last 8 weeks). In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Flu-like symptomsSo I bought the spray, had an extreme sore throat, but I kept working In context ↗
  • Neuropathy & tinglinghad formication in my feet and hands - sometimes they also felt numb In context ↗
  • Vision problemsI also experienced seeing objects multiple times In context ↗
  • Gut problemsFrom this day I felt nauseous all the time In context ↗
  • Anxiety & low moodstarted to have panic attacks almost everywhere And with it even anxiety appeared In context ↗
  • Heart symptoms & palpitationsmy anxiety went crazy, also the appetite loss and heartbeat were crazy bad In context ↗

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