Daily stomach and nerve pain with long COVID, now 70–80% better on Valium
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Oct 2024
In their words
- Condition: Long COVID
LC from repeated infections
In context ↗ - At worst: Moderate
it left me with neuropathy that is quite physically limiting
In context ↗ - Now: Much better
only been 70-80% improved the last month after 3 years of one thing after another, still have bad days but not anywhere near as bad
In context ↗ - Began after: COVID
nearly asymptomatic Covid, only loss of taste and smell for a week, November 2020
Read from 19 of their posts and comments; links to the 11 this page draws on
Summary
Crocus 41812 developed long COVID after a nearly asymptomatic Covid infection in November 2020, with daily stomach pain and nerve pain starting in March 2021. Nortriptyline eased some nerve pain but caused functional gallbladder disorder. Valium, sometimes with carisoprodol and cannabis, gave a 70–80% improvement by May 2024, though bad days continued and they remained limited.
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What they tried
What they credit
Also tried
Their words about each treatment
- Nortriptyline · Helped
the Nortriptyline has taken down the majority of my left side pain but not all
In context ↗ - Kratom · Helped
I have been testing Kratom and I do feel that it helps
In context ↗ - Valium (diazepam) · Helped
I use 15-25mg a day, only been 70-80% improved the last month after 3 years of one thing after another
In context ↗ - high THC indica with CBD · Helped
Only cannabis I found that helped was high THC indica such as Green Crack
In context ↗ - Carisoprodol · Helped
Carisoprodol for the muscle and nerve tension
In context ↗ - famotidine · Helped
I do take a general OTC famotidine 1 maybe 2 and it does help
In context ↗
Approaches: Benzodiazepines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2021 | daily stomach pain beganI developed what is called post-infectious/viral gastritis in March 2021In context ↗ | Not stated | |
| 2021 | 24/7 chronic pain and neuropathyI had 24/7 chronic pain since last year until this summer.In context ↗ | Moderate | |
| late 2022 | 2-3 month reprieve of worst symptomsa 2-3 month reprieve of the worst symptoms in late '22In context ↗ | Not stated | |
| March 2023 | two completely symptom-free daysLast 2 days I have been completely symptom free since getting immediate onset bullshit March '21In context ↗ | Near normal | |
| February 2024 | back as bad as 2021I'm just as bad as I was in '21 except for a 2-3 month reprieve of the worst symptoms in late '22.In context ↗ | Moderate | |
| May 2024 | 70-80% improved on ValiumGet some Valium any way you can, I use 15-25mg a day, only been 70-80% improved the last month after 3 yearsIn context ↗ | Mild | Diazepam (Valium) |
Adverse events
- Nortriptyline (Pamelor)“25mg nortriptyline gave me functional gallbladder disorder/biliary colic last year” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I shoveled like a madman and I felt it for the last 3 days from just one hour of intense physical activity.
In context ↗ - Neuropathy & tingling
neuropathy that is quite physically limiting
In context ↗ - Pain & fibromyalgia
I have moderate to severe intercostal muscle/nerve pain on my left side that is 24/7
In context ↗ - Gut problems
I get random nerve pain, stomach burning, nausea
In context ↗ - Loss of smell or taste
only loss of taste and smell for a week
In context ↗ - Anxiety & low mood
the anxiety of dealing with it and getting no answers
In context ↗
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