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ME/CFS Severe → near normalNeeds ongoing treatment

ME/CFS so bad they crawled around the house, now nearly normal on keto

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Dec 2021
In their words
  • Condition: ME/CFSI've lived with CF most of my life. In context ↗
  • At worst: SevereIt was 4 years ago when it really kicked me down to having to crawl around my house. A phone calls worth of exerted energy had me sleeping for 24hrs afterwards. In context ↗
  • Now: Near normalmy symptoms are a lot more manageable now ... I'm able to live a fairly normal life now In context ↗
  • Began after: nothing they could nameI've lived with CF most of my life. In context ↗
Read from 5 of their posts and comments; links to the 2 this page draws on

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Summary

Breeze 66677 had lived with chronic fatigue most of their life and hit a low around 2017, crawling around the house, sleeping 24 hours after a phone call, mental health shattered. A keto high-fat low-carb diet, recommended by a naturalist doctor, was a game changer, giving enough energy to work again and clearer thinking, though it had to be maintained; they started their own business to work around bad days. By December 2021 life was fairly normal.

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Asking aboutBreeze 66677’s story

What they tried

Their words about each treatment
  • keto/low carb diet · Helped a lotI've found eating keto/low carb diet has really been a game changer for me to give me back enough energy that I'm able to work again. In context ↗

Approaches: Diet

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—lived with chronic fatigue most of their lifeI've lived with CF most of my life. In context ↗Not stated
2017 (4 years before July 2021)kicked down to crawling around the house; slept 24 hours after a phone callIt was 4 years ago when it really kicked me down to having to crawl around my house. A phone calls worth of exerted energy had me sleeping for 24hrs afterwards. In context ↗Severe
2021-07-31keto/low-carb diet gave back enough energy to work againI've found eating keto/low carb diet has really been a game changer for me to give me back enough energy that I'm able to work again. In context ↗MildKeto and low-carb diets
2021-12-05symptoms much more manageable; fairly normal lifemy symptoms are a lot more manageable now ... I'm able to live a fairly normal life now. In context ↗Near normalKeto and low-carb diets

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseA phone calls worth of exerted energy had me sleeping for 24hrs afterwards. In context ↗
  • Brain fogHigh fat low carb diet has given me a more tools to manage my brain fog and fatigue. In context ↗
  • Anxiety & low moodMy mental health was shattered. In context ↗

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