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ME/CFS Outcome unclear

ME/CFS brain fog made cooking and games monumental; lorazepam occasionally helped

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Jul 2026
In their words
  • Condition: ME/CFSThings that would have taken a monumental amount of energy suddenly became more accessible. The brain fog lifted. In context ↗
  • At worst: ModerateThings that would have taken a monumental amount of energy suddenly became more accessible. In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on

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Summary

On r/mecfs they describe brain fog that made cooking a meal or playing a game take a monumental amount of energy. A bad cold in January 2026 briefly lifted the fog for a few days. Midodrine did nothing; lorazepam occasionally helped, and cyclobenzaprine reduced frequency. Night sweats improved after their psychiatrist moved their antidepressant to mornings.

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What they tried

Their words about each treatment
  • Lorazepam · HelpedLorazepam (0.5-1mg) has helped occasionally In context ↗
  • cyclobenzaprine · Helpedand so has cyclobenzaprine to reduce frequency In context ↗
  • midodrine · No changeI was on midodrine for a while! It honestly didn’t feel like it did anything :( In context ↗
  • antidepressant · Helpedmy psychiatrist switched my antidepressant timing to AM and that helped! In context ↗
  • cooling blanket and cooling sheets · Not saidI use a cooling blanket and cooling sheets too! I also bring cold packs into bed with me wrapped in dish towels. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2026-01-20living with ME/CFS: brain fog and limited energyThings that would have taken a monumental amount of energy suddenly became more accessible. In context ↗Moderate
2026-01-20a bad cold briefly lifted the brain fog for a few daysThe brain fog lifted. I glimpsed a world where I could function more. In context ↗Mild
2026-07-15night sweats eased after antidepressant timing was moved to morningsmy psychiatrist switched my antidepressant timing to AM and that helped! In context ↗Not stated

Symptoms mentioned

Their words about their symptoms
  • Brain fogIt was really eye opening when I saw what I might have functioned like without all of this brain fog. In context ↗
  • Heart symptoms & palpitationsI’ve struggled to explain what I’m feeling to doctors without seeming like a hypochondriac. Lorazepam (0.5-1mg) has helped occasionally In context ↗
  • Temperature regulationI was having night sweats that soaked the sheets, but had a normal hormone panel. In context ↗
  • Anxiety & low moodmy psychiatrist switched my antidepressant timing to AM and that helped! In context ↗

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