Practically bedridden with ME/CFS for a year, now much better with a ketogenic diet
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Jan 2019
In their words
- Condition: ME/CFS
CFS is literally defined by have exertion intolerance
In context ↗ - At worst: Severe
After pushing myself for a very long time I ultimately crashed and was practically bedridden for a year.
In context ↗ - Now: Much better
gotten me to the point of going to the gym on occasion ... I just had to freeze my membership because I had a mini crash.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A former semi-professional athlete with CFS, they kept exercising until they crashed and spent a year practically bedridden. Over about three years of antidepressants, gabapentin, Ritalin, vitamins and supplements they improved enough to reach the gym once or twice weekly with a heart-rate monitor. A ketogenic diet further improved their energy. Every push still caused a crash.
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What they tried
What they credit
Their words about each treatment
- CrossFit with a heart rate monitor · Helped
I try to exercise once or twice a week. It lifts my spirits.
In context ↗ - Keto / ketogenic diet · Helped
Keto has been very beneficial for me.
In context ↗ - Effexor · Helped
I can tell you what medications I’m on which have gotten me to the point of going to the gym on occasion ... I take Effexor and gabapentin, Ritalin and I just came off of depakote.
In context ↗ - depakote · Not said
I just came off of depakote
In context ↗ - vitamin D · Helped
I can tell you what medications I’m on which have gotten me to the point of going to the gym on occasion ... I take vitamin D, B12, E.
In context ↗ - ashwaganda root · Helped
I can tell you what medications I’m on which have gotten me to the point of going to the gym on occasion ... I take ashwaganda root, CoQ10, NADH, Iron, zinc and ginseng.
In context ↗
Approaches: SNRIs · Diet · Other drugs and medicines · Stimulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | became ill as a semi-professional athlete; exercise kept making it worseexercising was making me sicker and sickerIn context ↗ | Not stated | |
| — | crashed after pushing through exercise and was practically bedridden for a yearAfter pushing myself for a very long time I ultimately crashed and was practically bedridden for a year.In context ↗ | Severe | |
| — | medications got them to the point of going to the gym occasionally and studying medicine with a reduced loadI can tell you what medications I’m on which have gotten me to the point of going to the gym on occasion (mind you this took 3 years)In context ↗ | Mild | |
| January 2019 | mini crash after exercisingI just had to freeze my membership because I had a mini crashIn context ↗ | Mild | |
| January 2019 | ketogenic diet gave better quality energy and later sleep onsetI personally follow the ketogenic diet ... the quality of my energy is a lot betterIn context ↗ | Mild | Keto and low-carb diets |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Every time I push myself when exercising I crash.
In context ↗ - Sleep problems
I have to nap every day if I want to stay awake until 21:00
In context ↗
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