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Long COVID Mild → somewhat betterIll 15 months before improving or writing

Long COVID, brain fog and burning mouth pain, some improvement with stretching and posture

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
15 months
Last post
Jan 2024
In their words
  • Condition: Long COVIDmy symptoms began during covid infection and have persisted beyond 6 weeks now In context ↗
  • At worst: MildIv had to do some things in the past I wasn't proud of to keep working with brainfog. In context ↗
  • Now: Somewhat betterYour taste will eventually come back, and the burning will come and go. In context ↗
  • Began after: COVIDmy symptoms began during covid infection and have persisted beyond 6 weeks now In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A woman in her 30s with lupus developed long COVID in late 2022, with brain fog, reduced taste and constant burning pain in her lips, gums, tongue and throat, while still working. A dentist spotted her uvula pointing oddly, which led her to link the burning to the vagus nerve; relaxation, stretching and posture cut the pain noticeably within 15 minutes. The burning persisted but came and went.

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What they tried

Also tried

bakers chocolate, ice, ice cream, popsicles (bitter things)· Helpedmagic mouthwash· Helpedlidocaine· Helpedrelaxation and gentle stretching and good posture· Helpedanti-biotics· No changemint tea popsicles· Not saidavoiding coffee, tomato, and acidic things· Not said
Their words about each treatment
  • bakers chocolate, ice, ice cream, popsicles (bitter things) · HelpedI have found some relief licking bitter things like bakers chocolate, ice, ice cream, popsicles In context ↗
  • mint tea popsicles · Not saidBeen experimenting with mint tea popsicles because I am going to end up being a fatty if I keep downing ice cream. In context ↗
  • avoiding coffee, tomato, and acidic things · Not saidTrying to avoid coffee (ween myself off) and tomato, and acidic things. In context ↗
  • anti-biotics · No changeIm on a round of anti-biotics, still having issues In context ↗
  • magic mouthwash · HelpedI was using magic mouthwash from my dentist which she usually gave to cancer patients to try and numb the pain. It worked but it was expensive. In context ↗
  • lidocaine · HelpedI switched to lidocaine which is used to numb patients in dental procedures... as it was less expensive. In context ↗
  • relaxation and gentle stretching and good posture · Helpedwhen I do relaxation and gentle stretching and ensure perfect posture i can feel a noticeable drop in pain after about 15 minutes In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022COVID infection; taste loss and burning mouth began and persistedmy symptoms began during covid infection and have persisted beyond 6 weeks now In context ↗Mild
2024-01-27burning linked to the vagus nerve; relaxation, stretching and posture ease the painwhen I do relaxation and gentle stretching and ensure perfect posture i can feel a noticeable drop in pain after about 15 minutes In context ↗MildMeditation, yoga, breathwork

Symptoms mentioned

Their words about their symptoms
  • Brain fogMy brainfog is bad. In context ↗
  • Loss of smell or tasteI can barely taste bitter (say 5-10%) In context ↗
  • Neuropathy & tinglingthe burning will come and go In context ↗
  • Anxiety & low moodI literally could not help but imagine doing a yeetus deletus off my balcony In context ↗

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