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Cusack Protocol

10 people describe trying Cusack Protocol (5 with ME/CFS, 5 with long COVID). Of the 8 who said how it went, 6 say it helped, often with one symptom, and 1 got worse. One person credits it as one reason they got better overall.

Everyone · 10 people

All 10 who tried it

How it went for everyone who tried it

Helped means they said it helped with what they took it for, which may be one symptom and not the illness.

75%
helped
6 of 8
13%
no change
1 of 8
12%
got worse
1 of 8

Shares are out of the 8 people who said how it went. 2 more tried it without saying how it went.

Show as a table
How it wentPeopleShare
Helped a lot00%
Helped675%
No change113%
Worse00%
Much worse112%

Shares are rounded to add up to 100, so two equal counts can show a point apart.

Where it was reportedHelpedSaid how it went
Reddit68
Recovery stories00

Did it last, for everyone it helped?

  • None of the 6 people it helped said it wore off, whether or not they credit it for their improvement.

Read from what people wrote, and the more someone wrote, the more likely they are to mention it. Some people stop posting before saying, so the real number may be higher.

Everyone · 1 person

The one who credits it

The one person who credits it with their improvement: here’s how they are now

Credit it means they say it’s one reason they got better: 1 says it was one of several things that helped.

100%
recovered or near normal
1 of 1
0%
much or somewhat better
0 of 1
0%
relapsed
0 of 1

Where each person was at the end of their story, or in their latest post that says how they are, compared with their worst point.

Show as a table
Outcome describedPeopleShare
Recovered00%
Near normal1100%
Much better00%
Somewhat better00%
Relapsed00%

Did it last?

  • No one said its benefit wore off.
  • 1 of 1 who credits it says they still need to keep doing something (not always this) to stay well.
The one who credits it

By how ill people were

Only the one person who credits it, so people it didn’t help or made worse aren’t here. How they are now is their outcome overall, not the effect of this one treatment.

Severity at worstHow they are nownRecovered or near normal
Moderate1100%
Show as a table
At worstOutcomePeopleShare
ModerateNear normal1 of 1100%

Adverse events

What people said went wrong, in their own words.

1 of 10

people who wrote about taking it described a problem they tied to it

Described one · 1Didn’t mention one · 9

The serious kinds

Worth telling a doctor about straight away.

  • Made them much worse

    1 person
    “I tried the Cusack protocol and I had a horrible reaction to it. Made me much worse.”
    — Hare 11069

The serious kinds are a death, suicidal thoughts or an attempt, a hospital stay, an ER visit, an allergic reaction or anaphylaxis, heart rhythm, liver or kidney, blood count, mood or psychiatric, or refeeding or deficiency problems, and being made much worse: a large worsening such as a crash lasting weeks or more.

Other kinds

Unpleasant effects people tied to it, the most serious first.

Made symptoms worse · 1 ShowHide

  • Made symptoms worse

    1 person
    “I tried the Cusack protocol and I had a horrible reaction to it. Made me much worse.”
    — Hare 11069

Only what people tied to this treatment, in their own words, grouped by kind.

How often it comes up

Posts that mention Cusack Protocol, per 1,000 posts each month. Hover or tap a point for the count.

0201020142017202020232026
Show as a table
MonthPosts mentioning itAll postsPer 1,000
Oct 200901050
Jan 201001410
Feb 201001130
Jun 201101090
Nov 201101240
Dec 201101990
Jan 201202320
Feb 201201030
Mar 201201900
Apr 201201620
May 201203750
Jun 201202380
Jul 201202400
Aug 201204850
Sep 201205610
Oct 201205260
Nov 201205140
Dec 201206990
Jan 201305330
Feb 201304470
Mar 201304290
Apr 201304990
May 201306060
Jun 201306090
Jul 201306160
Aug 201305770
Sep 201303640
Oct 201305360
Nov 201303850
Dec 201305190
Jan 201409440
Feb 201408210
Mar 201404250
Apr 201403610
May 201406170
Jun 201404890
Jul 201404440
Aug 201406220
Sep 201405070
Oct 201406780
Nov 201405670
Dec 201406290
Jan 201507600
Feb 201508730
Mar 201501,2760
Apr 201509840
May 201501,4960
Jun 201501,0460
Jul 201501,2110
Aug 201509980
Sep 201501,0600
Oct 201501,2550
Nov 201501,2460
Dec 201509240
Jan 201601,2820
Feb 201601,0510
Mar 201601,0020
Apr 201609980
May 201601,0450
Jun 201601,2300
Jul 201601,6190
Aug 201601,7290
Sep 201601,7850
Oct 201601,2200
Nov 201601,0920
Dec 201601,2110
Jan 201701,6600
Feb 201701,9880
Mar 201702,0780
Apr 201702,1330
May 201702,3700
Jun 201702,1940
Jul 201702,1830
Aug 201702,4660
Sep 201702,1890
Oct 201703,0420
Nov 201701,9760
Dec 201702,1120
Jan 201802,6200
Feb 201802,1550
Mar 201802,6130
Apr 201802,2510
May 201802,8280
Jun 201803,8710
Jul 201803,0670
Aug 201803,7570
Sep 201803,5120
Oct 201803,2610
Nov 201802,8610
Dec 201802,7540
Jan 201903,6720
Feb 201902,7150
Mar 201903,3170
Apr 201903,1410
May 201913,8550.26
Jun 201903,3920
Jul 201903,3120
Aug 201903,9430
Sep 201904,0350
Oct 201903,9220
Nov 201903,5080
Dec 201903,6590
Jan 202004,6500
Feb 202004,3740
Mar 202004,4750
Apr 202003,6900
May 202004,5430
Jun 202005,7010
Jul 202006,1040
Aug 2020010,3330
Sep 2020011,9580
Oct 2020014,5680
Nov 2020016,5460
Dec 2020020,7640
Jan 2021024,5620
Feb 2021024,6720
Mar 2021029,4760
Apr 2021028,5090
May 2021025,7910
Jun 2021127,8710.04
Jul 2021027,2200
Aug 2021030,8080
Sep 2021030,0740
Oct 2021122,1320.05
Nov 2021027,7220
Dec 2021031,8720
Jan 2022042,3170
Feb 2022038,6970
Mar 2022044,3050
Apr 2022044,3330
May 2022050,5940
Jun 2022049,0580
Jul 2022153,4850.02
Aug 2022054,4550
Sep 2022056,9360
Oct 2022158,5110.02
Nov 2022659,1980.10
Dec 2022261,5760.03
Jan 2023061,0040
Feb 2023050,1330
Mar 2023159,9250.02
Apr 2023154,2510.02
May 2023057,7680
Jun 2023052,6790
Jul 2023056,4010
Aug 2023165,4350.02
Sep 2023161,8350.02
Oct 2023058,4190
Nov 2023053,6620
Dec 2023060,6430
Jan 2024271,8180.03
Feb 2024270,0450.03
Mar 2024868,2610.12
Apr 2024064,3740
May 2024867,6980.12
Jun 2024364,7200.05
Jul 2024265,3350.03
Aug 2024168,5170.01
Sep 2024270,1680.03
Oct 2024072,6070
Nov 2024171,8020.01
Dec 2024074,4010
Jan 2025177,9090.01
Feb 2025265,1100.03
Mar 2025569,9050.07
Apr 2025461,6060.06
May 2025265,7330.03
Jun 2025360,5400.05
Jul 2025162,1050.02
Aug 2025064,5780
Sep 2025161,7040.02
Oct 2025359,2040.05
Nov 2025058,9440
Dec 2025062,8300
Jan 2026063,3210
Feb 2026053,0850
Mar 2026059,2080
Apr 2026053,9890
May 2026057,5410
Jun 2026055,3010
Jul 2026056,3910
Aug 2026156,8250.02
Sep 2026057,1430

Forum and Reddit posts, 4,007,898 in all, counted per month. A mention means the post names the treatment, not that the writer took it. All trends

Everyone · 10 people

All 10 people who tried it

  • Months of crippling brain fog, now nearly back to normal with hormones and LDN

    Near normal Lynx 50397 Long COVID Moderate at worstIll 14 months before improving or writing reddit.com Sep 2025

    Lynx 50397, a Colorado circus acrobat in her forties with lifelong hEDS and MCAS plus POTS, began long hauling after RSV in December 2022 and sank into months of crippling brain fog. Estrogen patches and progesterone pills, with Wellbutrin, low-dose…

  • Very severe ME/CFS, bedbound and unable to walk, somewhat better after rest and pacing

    Somewhat better Doesn’t credit it · HelpedTundra 61871 ME/CFS Very severe at worstIll 16 years before improving or writing reddit.com Oct 2026

    Tundra 61871 had mild ME/CFS from their teens and worked part time at a mild level until a full-time job during COVID pushed them into a collapse in 2022. They became very severe: bedbound, unable to walk or talk, unable to bear light or sound. Four years of…

  • Mostly bedbound with long COVID, nicotine patches eased brain fog but they remained low

    Relapsed Doesn’t credit it · HelpedOrchid 62800 Long COVID Severe at worstIll 4.5 years before improving or writing reddit.com Oct 2026

    A US patient infected with COVID in early 2022 was reinfected twice and has been mostly bedbound since mid-2023. Low-dose nicotine patches eased brain fog, light and sound sensitivity and mildly eased exercise intolerance soon after starting; the neuro gains…

  • Housebound with ME/CFS and nerve pain, now close to normal after mold detox and peptides

    Near normal Doesn’t credit it · HelpedBeacon 95212 ME/CFS Severe at worstIll 4 years before improving or writing reddit.com Apr 2026

    Beacon 95212 became ill after COVID vaccination, with POTS, fatigue and later nerve pain; they were housebound while living with mold and had severe nerve pain for about two years. They attribute improvement to detoxing mold, treating Lyme, peptides,…

  • Long COVID with migraines, brain fog and pain, much better after HRT

    Much better Doesn’t credit it · HelpedOrchid 87385 Long COVID reddit.com Apr 2026

    Orchid 87385, in their mid-40s, has long COVID plus hEDS and 35 years of MCAS and POTS symptoms, with migraines, brain fog and pain. They credit HRT (estradiol patch and 400 mg progesterone daily) with a big improvement, and Wellbutrin with low-dose…

  • ME/CFS: 18 months of dysautonomia, cardiac and neurological symptoms, much better with time

    Much better Doesn’t credit it · Much worseHare 11069 ME/CFS Very severe at worstIll 18 months before improving or writing reddit.com Jan 2026

    A doctor who fell ill with long COVID in March 2020 spent 18 months with dysautonomia, cardiac and neurological symptoms before recovering in October 2021, crediting only time; supplements, ivermectin and DNRS did nothing, while LDN caused a severe setback.…

  • Flat for six months with long COVID, now somewhat better after d-ribose

    Somewhat better Doesn’t credit it · Not saidRidge 74208 Long COVID Severe at worstIll 9 months before improving or writing reddit.com Dec 2025

    Ridge 74208 was 45 and already disabled by EDS, hyperadrenergic POTS and MCAD when she caught COVID-19 in early 2020. She was flat for six months, unable to bathe or get off the floor, and restarting d-ribose in November 2020 had her upright within about a…

  • Mostly in bed with long COVID; benzodiazepines and alcohol halved symptoms, then relapse

    Relapsed Doesn’t credit it · No changeIsland 20822 Long COVID Severe at worstIll 4 years before improving or writing reddit.com Aug 2025

    A Reddit user four years into long COVID was mostly in bed with body weakness, heavy muscles and aches. Hyperbaric oxygen, plasmapheresis, rapamycin, triple anticoagulants, Mestinon and baricitinib gave no relief, they said, while benzodiazepines and alcohol…

  • ME/CFS for seven years, worst crash, improved with brain training then relapsed

    Relapsed Doesn’t credit it · HelpedPlover 41226 ME/CFS Moderate at worstIll 7 years before improving or writing reddit.com Nov 2022

    Plover 41226 had CFS for about seven years, which they linked to early emotional trauma, and spent the first years treating Lyme, Babesia and mould. Moving to a desert city in 2019, pacing and Nexavir helped; brain training was a big part of a remission…

  • Cusack protocol for EDS—reports from anyone trying it

    Relapsed Doesn’t credit it · Not saidxebex ME/CFS forums.phoenixrising.me Oct 2021

    Xebex had ME with thoracic spinal instability. Within a few days of starting maitake they could stand longer and their spine felt less unstable. A couple of days later, immune symptoms that had been in remission for roughly two years returned, including POTS…

The first one credits Cusack Protocol for their improvement; the other 9 tried it without crediting it.

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New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

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