ME/CFS, acupuncture and Chinese herbs gave more energy for years before relapse
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2024
In their words
- Condition: ME/CFS
I never did get a diagnosis other than CFS and therefore no Western treatment
In context ↗ - At worst: Mild
Working from home was so much better. I could take breaks and lie down or go for a walk whenever I needed to.
In context ↗ - Now: Relapsed
I felt good for years but it’s back now
In context ↗
Read from 18 of their posts and comments; links to the 12 this page draws on
Summary
Beech 70382 had CFS with no diagnosis beyond it and no Western treatment. Acupuncture and Chinese herbs gave more energy over three or four months, and they felt good for years before the illness returned; it was back by 2023. A move to dry Colorado, a diet avoiding foods identified by sensitivity testing and air filters helped somewhat, though fatigue still varied with the weather.
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What they tried
What they credit
Also tried
Their words about each treatment
- Acupuncture · Helped
This goes on three or four months. I do feel better and better tho, more energy, less blah/oogey feeling, just not my guts.
In context ↗ - Chinese herbs (boiled decoction) · Helped
I do feel better and better tho, more energy, less blah/oogey feeling, just not my guts.
In context ↗ - Elimination diet (7 foods to avoid after sensitivity testing) · Helped
Helped a bit with fatigue but 100% cleared up my GERD and chronic pain.
In context ↗ - Wholistic medicine practitioner / naturopath · Helped
Finally I saw a wholistic medicine practitioner and based on some actual sensitivity tests I ended up with just 7 foods to avoid.
In context ↗ - Avoiding mold, mushrooms and anything fermented · Helped
Turns out my chronic fatigue was greatly influenced by fungus. I avoid mold, mushrooms, and anything fermented
In context ↗ - Room air purifier with ion machine · Helped
A room air filter plus ion machine helps, too.
In context ↗ - Moved from West Virginia to Colorado · Helped
I changed my diet and environment. Moved from moist West Virginia to dry Colorado. ... Wet is bad, bad, bad. Dry is better just not great.
- Meditation and breathing exercises · Helped a lot
Meditation is a life saver and something you can start right now.
In context ↗ - Psychotherapy (therapist) · Helped a lot
My current therapist saved my life more than once.
In context ↗ - Supplements (unspecified) · Helped
I found a new supplement that helped a bit.
In context ↗ - Support group · Helped
Joining a support group was helpful in the simple sense that I have a weekly commitment to show up for.
In context ↗ - Pedal-assist electric bike with heart rate monitor · Not said
I got a heart rate monitor and a pedal assist electric bike. ... I pedal along lazily burning fat and not even breaking a sweat.
In context ↗
Approaches: CBT & mindset · Alternative therapies · Diet · Mind-body practices · Mould avoidance
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | CFS began; no diagnosis or Western treatmentI never did get a diagnosis other than CFS and therefore no Western treatment.In context ↗ | Not stated |
| — | More energy after months of acupuncture and herbsThis goes on three or four months. I do feel better and better tho, more energy, less blah/oogey feeling, just not my guts.In context ↗ | Mild |
| — | Felt good for yearsI felt good for yearsIn context ↗ | Near normal |
| 2023 | CFS returnedI felt good for years but it’s back now and Jing Ping returned to China.In context ↗ | Mild |
| 2023 (a few months before August) | Hit an emotional bottomI hit that bottom a few months ago.In context ↗ | Mild |
| 2023-08-26 | A new supplement helped a bitI found a new supplement that helped a bit.In context ↗ | Mild |
| 2024-01-07 | Energy varies with the weather; still avoiding mould and chemicalsMy energy varies with the weather (among other things). Wet is bad, bad, bad. Dry is better just not great.In context ↗ | Mild |
Adverse events
- Chinese herbal medicine (TCM formulas)“I haven’t had a solid BM since. Probably killed off all my intestinal flora.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
Helped a bit with fatigue but 100% cleared up my GERD and chronic pain.
In context ↗ - Anxiety & low mood
I wouldn’t off myself—it would hurt too many people—but I wouldn’t mind either if I were dead. But, you know what? It passed.
In context ↗ - Mast cell (MCAS) & allergies
Eventually found some allergies ... I have to avoid toxic chemicals even scented products.
- Neuropathy & tingling
Yes. Hot baths are devastating. I have to take cool showers.
In context ↗
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