Long COVID with 35 symptoms, near normal after time, but relapses and flares remain
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2025
In their words
- Condition: Long COVID
38 months and mostly recovered.
In context ↗ - At worst: Mild
I lost two years of my pickleball honing skills and I'm 66.
In context ↗ - Now: Near normal
I'm always 90 percent recovered cuz of this BS.
In context ↗ - Began after: COVID
my covid infection in Jan of 22
Read from 32 of their posts and comments; links to the 20 this page draws on
Summary
A retired court stenographer fell ill with long COVID in January 2022 and was really sick, with 35 symptoms, nerve issues, internal vibrations, twitching and months of daily crying. They credited time for gradual improvement to near-normal, playing pickleball again by January 2023, but relapsed badly in May 2023 after playing pickleball 8 of 9 days. Reinfections in March 2024 and March 2025 each caused flares; nerve symptoms and exercise-triggered flares remained years later.
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What they tried
What they credit
Also tried
Their words about each treatment
- private clinic treatment package (it) · Worse
I did it for two weeks and I think it made me worse.
In context ↗ - HBOT · Helped
I had SOB early on very mild, HBOT fixed it, I guess
In context ↗ - returning to pickleball and cycling · Worse
Then had a horrible relapse beginning of May ... after I played pickleball 8 out of 9 days
In context ↗ - Neprinol AFD · No change
Been on it for months and no improvement.
In context ↗ - nicotine patches · Worse
I did them for 13 days and stopped. ... I was worse on them for sure.
In context ↗ - Creon · Helped
I have to take powerful ones, like, Creon, which work best but would like to avoid big pharma so I mostly take OTC ones.
In context ↗ - B12 injections · No change
I was injecting B12 on and off during the months but didn't do much.
In context ↗ - B vitamins (methyl B12) · Helped
I just started taking B vitamins and it seems to have quieted everything down.
In context ↗ - time · Helped a lot
38 months and mostly recovered. ... Time is the answer for most.
In context ↗ - Zenpep · Not said
That what I take, 40,000 zenpep. ... I take at least three with a meal and still have bad stools.
In context ↗ - wal-som · Helped
I used to take wal-som from walgreens. ... Stuff works great.
In context ↗ - Epsom salts baths · Helped
Epsom salts baths help temporarily.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2022 | fell ill with long COVID after a covid infectionI was really sick Jan of 22In context ↗ | Not stated | |
| April 2022 (month 3) | all other symptoms started after a panicked stateI believe my panicked state triggered all my other symptoms at month three.In context ↗ | Not stated | |
| January 2023 | doing good and playing pickleball tournamentsOh, I was doing good in January. ... Played in a few pickleball tournaments.In context ↗ | Near normal | Time and spontaneous remission |
| May 2023 | horrible relapse after playing pickleball 8 out of 9 daysThen had a horrible relapse beginning of May and too scared to do anything after I played pickleball 8 out of 9 daysIn context ↗ | Mild | |
| November 2023 | almost 100 percent, with minor flareups from exercisingMonth 23 and I'm almost 100 percent.In context ↗ | Near normal | Time and spontaneous remission |
| March 2024 | reinfection flare with a new symptomI just got reinfected mid March. ... Now I'm flared up and even got a new symptom.In context ↗ | Mild | |
| August 2024 | almost recovered again after the March 2024 setbackI'm almost recovered again after the setback from covid march of 24.In context ↗ | Near normal | Time and spontaneous remission |
| March 2025 | fourth covid infection brought months of flaresI did nothing and was barely sick but my symptoms flare up for months, it seems.In context ↗ | Mild | |
| September 2025 | playing pickleball but still flaring after the March infectionI still have it but not as bad. ... I had covid in March, and seems I am still in a flare.In context ↗ | Near normal |
Adverse events
- “I did it for two weeks and I think it made me worse.” In context ↗ Made symptoms worse
- Nicotine patches“I did them for 13 days and stopped. I was worse on them for sure.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Exercise does flare my symptoms but not like they used to.
In context ↗ - Neuropathy & tingling
I still have internal vibrations in my lower legs.
In context ↗ - Pain & fibromyalgia
I have joint and nerve issues.
In context ↗ - Breathlessness
I had SOB early on very mild, HBOT fixed it, I guess.
In context ↗ - Hair loss
my hair is falling out since mid April
In context ↗ - Anxiety & low mood
I cried every day for six months.
In context ↗ - Gut problems
I take at least three with a meal and still have bad stools.
In context ↗
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