Unable to work or drive with long COVID, now fully recovered after nervous-system program
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I have long covid, MCAS, histamine intolerance, POTS and all the long covid symptoms. Been suffering since Sept of 2022.
In context ↗ - At worst: Severe
I suffered for 3 years with long covid. Could not work drive, watch tv, barely walk to the bathroom.
In context ↗ - Now: Recovered
I’m 61 and fully recovered. LC since 2022.
In context ↗ - Began after: COVID
I have long covid, MCAS, histamine intolerance, POTS and all the long covid symptoms. Been suffering since Sept of 2022.
In context ↗
Read from 80 of their posts and comments; links to the 28 this page draws on
Summary
A 60-year-old with long COVID since September 2022 could not work, drive or watch TV and barely walked to the bathroom. Cash-pay regenerative medicine brought them to about 65%, then they dropped back to roughly 30%. From May 2025 an online nervous-system recovery program took them to 75–85%, and by early 2026 they described themselves as fully recovered. They lost hearing in the left ear and spent about $50,000 on cash-pay care.
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What they tried
What they credit
Also tried
Their words about each treatment
- tirzepatide · Worse
Side effects were too much for me.
In context ↗ - levothyroxine (later Tirosint) · Helped
A few months ago I dropped my thyroid medication levothyroxine down from 75 mg per day to 25 mg per day and that seem to have helped a lot.
In context ↗ - Ativan (lorazepam) · Helped
One of my doctors gave me Ativan. It helps a lot.
In context ↗ - antidepressant · Worse
Long covid has not interacted well with my antidepressant and thyroid medications.
In context ↗ - IV therapy for long Covid · Helped
It is definitely helping while I am doing it.
In context ↗ - Dr. McCullough's supplement combo (bromelain, nattokinase, curcumin) · No change
Did nothing for me.
In context ↗ - nicotine patch · Helped
Loved them. Energy & no brain fog. Felt good.
In context ↗ - stem cells & peptides (Dr. Ghalili protocol) · Helped
I did 5 treatments , one a week for 5 weeks.
In context ↗ - prednisone / steroid shot · Worse
They put me on prednisone for two weeks. When I came off of it, all hell broke loose in my body.
In context ↗ - vitamin B12 supplement · Not said
I am taking a very low dose of vitamin B12.
In context ↗ - Low Dose Naltrexone (LDN) · Helped
less pain & less brain fog
In context ↗ - Allegra (fexofenadine) and Zyrtec · Helped
I found Allegra works better for me
In context ↗ - LMNT electrolytes · Not said
LMNT electrolytes for POTS
In context ↗ - foreign protein cleanse · No change
I didn’t notice a difference
In context ↗ - CFS Recovery online program · Helped a lot
I used CFS recovery and it got me from 30% to 75%.
In context ↗ - dental work · No change
I had $6k of dental work done on that side.
In context ↗
Approaches: Brain retraining · Biologics & antibodies · Peptides
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.2 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| September 2022 | Long COVID beganBeen suffering since Sept of 2022.In context ↗ | Not stated |
| 2024 | could not work, drive or watch TV; barely walked to the bathroomAt one time I couldn’t leave the house or drive.In context ↗ | Severe |
| January 2025 | cash-pay regenerative medicine treatments in Los Angeles; about 65% of their old selfI am doing much better than I was. I am not 100% not sure I ever will be.In context ↗ | Mild |
| March 2025 | hearing loss and prednisone withdrawal: whole-body shaking, internal tremors returned; down to about 30%When I came off of it, all hell broke loose in my body. I had to go on Ativan to handle the body shaking.In context ↗ | Moderate |
| July 2025 | online nervous-system recovery program; about 70% of their old self, walking 8,000-10,000 steps a dayI joined a CFS recovery program & it’s really helpful. I feel about 70% of my old self.In context ↗ | Mild |
| November 2025 | 75-80% normal, leading a pretty normal lifeI started an online recovery program in May & now I’m 75-80% normal.In context ↗ | Mild |
| December 2025 | a solid 85% betterI joined an online recovery program in May of this year and I am a solid 85% better.In context ↗ | Near normal |
| February 2026 | described themselves as fully recoveredI’m 61 and fully recovered. LC since 2022.In context ↗ | Recovered |
| September 2026 | still doing pretty goodLong Covid stuff. Doing pretty good nowIn context ↗ | Recovered |
Adverse events
- Tirzepatide (Mounjaro, Zepbound)“Side effects were too much for me.” In context ↗ Side effects
- Levothyroxine (Synthroid)“the levothyroxine I am taking for my sluggish thyroid may not be the right dose. That the medication could be causing my inner tremors and panic attacks.” In context ↗ Side effects
- Lorazepam (Ativan)“went off cold turkey after 10 years. Took a year to be able to sleep again.” In context ↗ Withdrawal problems
- Antidepressants (unspecified)“Long covid has not interacted well with my antidepressant and thyroid medications.” In context ↗ Side effects
- Nicotine patches“But it interrupted my sleep.” In context ↗ Insomnia from treatment
- Nicotine patches“Went off after 20 days due to high aniexty & heart racing.” In context ↗ Heart rhythm problems
- Nicotine patches“except the last week my aniexty went through the roof. I had to stop.” In context ↗ Mood or psychiatric effects
- Low-dose naltrexone“But it was hard to sleep last nite. I take 1/2 Ativan to sleep & I think it lessened the effect of Ativan.” In context ↗ Insomnia from treatment
- Corticosteroid pulses“When I came off of it, all hell broke loose in my body. I had to go on Ativan to handle the body shaking.” In context ↗ Withdrawal problems
- Cetirizine (Zyrtec)“Zrytek makes me feel worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
Brain fog, fatigue , pain & the list goes on.
In context ↗ - POTS & dysautonomia
I have long covid, MCAS, histamine intolerance, POTS and all the long covid symptoms.
In context ↗ - Mast cell (MCAS) & allergies
I have long covid, MCAS, histamine intolerance
In context ↗ - Sleep problems
Took a year to be able to sleep again.
In context ↗ - Heart symptoms & palpitations
I get internal shaking, heart racing every morning at 5 am for no reason.
In context ↗ - Neuropathy & tingling
Now 1 1/2 mg LDN for nerve pain & inflammation
In context ↗ - Flu-like symptoms
I have swollen lymph nodes under my chin & neck , less pain & less brain fog.
In context ↗
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