Largely bedridden with long COVID for about a year, now mostly functional, crediting time
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 14 months
- Last post
- Jul 2024
In their words
- Condition: Long COVID
My symptoms are closer to those associated with long haul covid, so I joined this sub as well.
In context ↗ - At worst: Severe
My kid watched me lay in bed for a year.
In context ↗ - Now: Much better
I'm not saying I'm healthy by any means, but I'm mostly functional and I'll take it!
In context ↗ - Began after: a vaccination
I developed tachycardia and a few other symptoms after my 2nd moderna vaccine.
In context ↗ - Says they never had: Loss of smell or taste
I didn't have any typical covid symptoms like a cough or loss of taste / smell.
Read from 37 of their posts and comments; links to the 20 this page draws on
Summary
Bluebell 74930 developed tachycardia and other symptoms after a second Moderna dose in mid-2021 and was largely bedridden for about a year. She began improving around month 14, crediting time, and by mid-2023 was mostly functional, though not healthy by her own account. Migraine medication eased her migraines, and by 2024 neck pain and a palpable spinal mass left her doubting she could work.
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What they tried
What they credit
Also tried
Their words about each treatment
- metoprolol · Helped
It's mostly okay now. I take metoprolol.
In context ↗ - migraine medicine (Maxalt, generic) · Helped a lot
I got a prescription for migraine medication and it worked surprisingly well.
In context ↗ - moved out of my moldy house · Helped a lot
I moved out of my moldy house and felt much better after about 2 months.
In context ↗ - time · Helped a lot
I started getting better at month 14.
In context ↗ - COVID vaccination as treatment · Worse
But I also had heart problems, which is why I went to the ER.
In context ↗
Approaches: Mould avoidance
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | tachycardia and other symptoms after 2nd Moderna vaccine; hospital visit for cardiac issuesI developed tachycardia and a few other symptoms after my 2nd moderna vaccine.In context ↗ | Severe | |
| 2021 | bedridden for about a year; mother stayed a month to help care for hermy mom had to come stay with us for a month because I was too sick to function and I needed a babysitter for my kid (and myself!)In context ↗ | Severe | |
| 2022 | relapse after about 2.5 months of mostly good daysit was about 2.5 months ... but it recently came back again.In context ↗ | Moderate | |
| 2022 | started getting better; considered vocational rehab for an easy part-time jobI started getting better at month 14.In context ↗ | Mild | Time and spontaneous remission |
| 2023 | good phases grew longer until the improvement finally lastedThen one day, it finally didn't end!In context ↗ | Mild | Time and spontaneous remission |
| 2024 | mostly functional but limited by neck pain and a palpable spinal massI don't think I could really work and I need to support my kid.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“I developed tachycardia and a few other symptoms after my 2nd moderna vaccine.” In context ↗ Heart rhythm problems
- COVID vaccination as treatment“But I also had heart problems, which is why I went to the ER.” In context ↗ ER visit
- COVID vaccination as treatment“I had involuntary muscle twitching at the injection site after my 2nd moderna shot” In context ↗ Side effects
- COVID vaccination as treatment“I was so excited to get vaccinated and return to the world, but I wound up in the hospital with serious cardiac issues.” In context ↗ ER visit
- “It does make me feel weird but if I take it at night” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the next day I might as well have run an epic marathon and have to recover all over again
In context ↗ - Brain fog
It has gotten better but I still struggle with speaking and comprehension.
In context ↗ - POTS & dysautonomia
It sucked not being able to change my light bulbs and once I even fell over in the yard because I looked at the moon for more than a couple of seconds.
In context ↗ - Heart symptoms & palpitations
my heart rate is immeasurably high during one, like 200+
In context ↗ - Headaches & migraine
Yes, but it turns into migraines.
In context ↗ - Pain & fibromyalgia
I was having neck pain as a migraine symptom due to changing hormone levels
In context ↗ - Temperature regulation
I'm usually freezing when I'm out of bed even if it's a comfortable temperature.
In context ↗ - Muscle weakness
I had to crawl to the bathroom to help her use the potty
In context ↗
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