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Long COVID Severe → somewhat betterIll 4 years before improving or writingNeeds ongoing treatment

Long COVID, once needing a shower chair, somewhat better; ivermectin helped briefly

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4 years
Last post
Mar 2026
In their words
  • Condition: Long COVIDI have had long Covid a little over 4 years. In context ↗
  • At worst: SevereI literally had to sit in a chair in the shower and that was it for the week In context ↗
  • Now: Somewhat betterI am at 4 years and have had some improvements but some things are still quite difficult In context ↗
  • Began after: COVIDI have had long Covid a little over 4 years. In context ↗
Read from 18 of their posts and comments; links to the 15 this page draws on

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Summary

Birch 84572 has had long COVID for about four years. At worst they needed a shower chair and a shower left them done for the week; now they can stand for two showers a week but remain limited by fatigue, weakness, breathlessness and cognitive difficulties. After about a year things began to improve, though overdoing it still causes flares. Ivermectin, antibiotics and glutathione gave temporary relief that faded within a week of stopping.

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What they tried

Their words about each treatment
  • Ivermectin · HelpedIvermectin had the most noticeable effect and gave more energy and a feeling that more oxygen was getting to muscles and organs. The feeling of air starvation was gone. In context ↗
  • antibiotics · HelpedIvermectin, antibiotics, and glutathione all had temporary improvements and returned to a baseline of sickness within a week after I stopped taking them. In context ↗
  • NATO · WorseI had the same experience almost exactly. It felt like the virus or spike, whatever is causing the continued sickness had to regroup and combat the NATO / Sera In context ↗
  • exercising · WorseI have tried many times and it causes all kinds of symptoms to flair and fatigue that puts me back in the bed. In context ↗
  • eating lots more · No changeI tried eating lots more too. ... Covid just laughed In context ↗
  • pacing · Not saidI have a very hard time finding a level of pacing that works! I have experienced making it worse by going to hard when I have windows of feeling better. In context ↗
  • hydration with proper electrolytes · Helpedthe most important things for me have been to make sure I stay hydrated with proper electrolytes added during waves of sickness! In context ↗
  • radical rest · HelpedAlso radical rest especially when fatigued. ... those three things I mentioned to do I’ve been very important to me surviving and tolerating this. In context ↗
  • reducing stress · Helpedreducing stress as much as possible ... it seems to really make things worse if i stress In context ↗
  • time · HelpedAfter about a year things started getting better. In context ↗

Approaches: POTS medication · Radical rest

Their path

Very severeSevereModerateMildNear normalRecovered12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 12 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetlong COVID onsetI have had long Covid a little over 4 years. In context ↗Not stated
a few years agoneeded shower chair; shower ended weekI literally had to sit in a chair in the shower and that was it for the week. In context ↗Severe
after about a yearbegan improvingAfter about a year things started getting better. In context ↗ModerateTime and spontaneous remission
2025-07-20flare after a few good daysI am in a flare again right now In context ↗Not stated
2025-08-12able to stand for two showers a weekI guess I should be thankful that I can stand up and take two showers a week now lol, not. In context ↗Moderate
2025-09-16exercise attempts caused symptom flare and bed restI have tried many times and it causes all kinds of symptoms to flair and fatigue that puts me back in the bed. In context ↗Severe
2026-03-10still ill; relies on hydration, radical rest and stress reductionI have had long Covid a little over 4 years. I have not figured out much of the why or how to fix anything In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI have tried many times and it causes all kinds of symptoms to flair and fatigue that puts me back in the bed. In context ↗
  • Brain fogthings like word problems and putting together plans that require timing and logistics are very difficult for me In context ↗
  • POTS & dysautonomiaDizzy, short of breath, etc. In context ↗
  • BreathlessnessI still have shortness of breath for almost 4 years now. In context ↗
  • Heart symptoms & palpitationsI went through this also and it took about a year for it to improve. In context ↗
  • Muscle weaknessfor me the fatigue and weakness are stopping me from exercising In context ↗
  • Neuropathy & tinglingnerve pain in legs arms and anywhere in between In context ↗
  • Anxiety & low moodI still have my body Adrenaline fight or flight response overreact to any Perceived threat. In context ↗

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