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ME/CFS Severe → near normalIll 2 years before improving or writingNeeds ongoing treatment

Bedbound at first with ME/CFS, now nearly back to normal after vitamin D3 and supplements

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 years
Last post
Apr 2026
In their words
  • Condition: ME/CFSI really hope this helps me and perhaps I can help others to find out if this is the underlying issue that is causing my debilitating fatigue In context ↗
  • At worst: SevereThe first few months I was completely bed bound and thought I was actually dying In context ↗
  • Now: Near normalIts a lot but I got my life back. I still have to rest my body after really active days but im no longer totally depleted. In context ↗
Read from 17 of their posts and comments; links to the 11 this page draws on

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Summary

Ill from May 2024 with extreme fatigue, insomnia, dizziness, migraines, night sweats, palpitations and brain fog, they were bedbound for the first months. With no diagnosis, they built a supplement and juice regimen, including high-dose vitamin D3, which they credit with getting their life back. A setback after Christmas 2024 made the supplements help less, but by April 2026 they were no longer totally depleted, though still resting after active days.

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What they tried

Also tried

supplements following medical mediums advice· Helpedcutting out as much sugar as I can· Helpedmiralax· Helpedcompression socks· HelpedIP-6 inositol· Helped
Their words about each treatment
  • vitamin c · HelpedSince starting the celery juice, vitamin c, l-lysine and zinc, I've actually been feeling a lot better and it's only been 3 days. In context ↗
  • supplements following medical mediums advice · HelpedI've been following his regimen and have been feeling a lot better not cured of course but better enough to be able to work. In context ↗
  • celery juice · HelpedI've started drinking 20 oz of fresh celery juice first thing in the morning In context ↗
  • pro-biotics · HelpedI am now treating my self with pro-biotics, oregano oil and apple cider vinegar and cutting out as much sugar as I can and I have been feeling a bit better. In context ↗
  • cutting out as much sugar as I can · Helpedcutting out as much sugar as I can and I have been feeling a bit better In context ↗
  • miralax · HelpedI used to battle with constipation but I started taking miralax every 2 days to help with that. In context ↗
  • vitamin d3 · Helped a lotI take high doses of vitamin d3 to keep me going 20k IU's twice a day. Without it I am completely bed bound and in a fog. In context ↗
  • compression socks · HelpedFor your achy legs try compression socks. They really help me. In context ↗
  • iron · HelpedSure I take iron, selenium, vitamin c, vitamin d3 with k2 20kiu's twice a day In context ↗
  • magnesium glycinate · Helpedmagnesium glycinate, zinc, B complex, coq10, tumeric and alfalfa In context ↗
  • tudca · Helpedfor my gut health i take tudca, oil of oregano, IP-6 inositol In context ↗
  • black seed oil · Helpeda teaspoon of black seed oil and soursop In context ↗

Approaches: Amino acids and carnitine · Diet · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
May 2024Sudden onset of debilitating fatigue; bedbound for the first months and off workThe first few months I was completely bed bound and thought I was actually dying In context ↗Severe
July 2024Started celery juice, vitamin C, l-lysine and zinc and felt better within days; back to work from home with rest breaksSince starting the celery juice, vitamin c, l-lysine and zinc, I've actually been feeling a lot better and it's only been 3 days In context ↗Moderate
September 2024On a large supplement regimen, felt 70% better than at onset but not 100%I have to admit I feel 70% better than the way I felt when this suddenly came on In context ↗Moderate
Late 2024Felt fine for about two months and could exercise a bit, worn out for two days afterI felt fine for about 2 months and was able to exercise a bit but would feel a bit worn out for about 2 days after but it was tolerable In context ↗Mild
January 2025Setback after Christmas with fatigue, weakness, brain fog, headaches and aching legs and shoulders; supplements helping lessAfter Christmas, I just started feeling really worn out with Fatigue, weakness, brain fog, headaches, achy legs and shoulders but it wasn't as bad as when it started In context ↗Moderate
April 2026Got life back on a self-built supplement and juice regimen; still rests after really active daysIts a lot but I got my life back. I still have to rest my body after really active days but im no longer totally depleted In context ↗Near normal

Symptoms mentioned

Their words about their symptoms

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