Long COVID
Mild → somewhat betterIll 2 years before improving or writing
Tingling and electric shocks with long COVID, partly better on low-dose naltrexone
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Jul 2024
In their words
- At worst: Mild
I am functional though
In context ↗ - Now: Somewhat better
Slightly improved but still pretty bad.. I feel like the brain takes forever to heal..
In context ↗ - Began after: a vaccination
started after vaccine in May
Read from 22 of their posts and comments; links to the 12 this page draws on
Summary
Nightjar 89942 developed tingling and electric-shock sensations in the feet and legs after vaccination in May, worsened by COVID in late July. Botox set off burning head and throat, brain fog, dizziness and insomnia, and an MRI with contrast made things worse. Low-dose naltrexone 0.5 mg cleared their brain fog, and by late August 2023 they rated themselves 60% recovered; brain fog was still bad in 2024.
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What they tried
Also tried
supplements· Helped · wore offlow dose naltrexone· HelpedPrednisone / corticosteroids· Helped · wore offMRI with contrast· WorseBotox· Much worse
Their words about each treatment
- supplements · Helped
My symptoms gradually got better with supplements but are flaring again at the start of the new year
In context ↗ - Botox · Much worse
I think I had an irregular immune response to botox.
In context ↗ - MRI with contrast · Worse
I got an MRI with contrast on top of all of this and it made it worse!
In context ↗ - low dose naltrexone · Helped
Starting low dose naltrexone for inflammation and hoping it fixes the sensations and POTS!
In context ↗ - Prednisone / corticosteroids · Helped
Steroids seem like the only thing that helps
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| May | tingling and electric-shock sensations started after vaccineTingling and electric-shock sensations in feet and legs started after vaccine in MayIn context ↗ | Not stated | |
| late July | symptoms worsened after COVIDworsened after COVID in late JulyIn context ↗ | Not stated | |
| May 23rd 2022 | botox triggered burning head and throat and brain fogThe Botox triggered burning head and throat for meIn context ↗ | Mild | |
| July 7 2022 | MRI with contrast worsened symptomsI got mine July 7 2022 and am noticing symptoms pretty much right off the bat. Some brain fog, dizziness, insomnia, muscle spasms and jerksIn context ↗ | Mild | |
| — | symptoms gradually improved with supplementsMy symptoms gradually got better with supplementsIn context ↗ | Not stated | |
| 2023-01-05 | symptoms flared and spread to arms, neck, faceare flaring again at the start of the new year and spreading to arms, neck, faceIn context ↗ | Mild | |
| 2023-06-28 | brain fog cleared on low-dose naltrexone0.5mg cleared things up for me after COVID with brain fog!In context ↗ | Mild | Low-dose naltrexone |
| 2023-08-31 | rated themselves about 60% recoveredI am functional though. ... Recovered- I’d say 60%.. 100% would be perfection/pre-COVID state/no issues whatsoeverIn context ↗ | Mild | Low-dose naltrexone |
| 2024-05-21 | brain fog only slightly improvedSlightly improved but still pretty bad.. I feel like the brain takes forever to heal..In context ↗ | Mild | |
| 2024-07-21 | burning head and throat nerve pain gone after five monthsIt went away for me after 5 monthsIn context ↗ | Mild |
Symptoms mentioned
Anxiety & low moodBrain fogHeadaches & migraineNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Neuropathy & tingling
Tingling and electric-shock sensations in feet and legs
In context ↗ - Brain fog
Slightly improved but still pretty bad.. I feel like the brain takes forever to heal..
In context ↗ - POTS & dysautonomia
hoping it fixes the sensations and POTS
In context ↗ - Headaches & migraine
Burning in head and throat
In context ↗ - Sleep problems
some jerky movements, insomnia
In context ↗ - Pain & fibromyalgia
BAD upper back pain, (aching, tightness, burning)
In context ↗ - Anxiety & low mood
lasting throat and head burning, brain fog, dizziness, anxiety
In context ↗