Long COVID
Mild → relapsed
Rob's story
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving
- Not stated
- Published
- No date given
Read the original ↗
In their words
- Condition: Long COVID
I say I have Long Covid.
In context ↗ - At worst: Mild
I returned to work on reduced hours.
In context ↗ - Now: Relapsed
Having made what felt like a steady and sensible recovery, I hit a wall. My symptoms returned
In context ↗ - Began after: COVID
And in 2021 on the 9th of September I got Long Covid.
Summary
Rob got Long Covid in September 2021 and was bed-ridden for a couple of weeks, then returned to work on reduced hours. He says an occupational health referral and an employee passport helped him rationalise what he could do and agree adjustments with his manager. He has had five relapses since, and still has brain fog, pins and needles and crashes driven by mental overload, but is working.
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What they tried
What they credit
Occupational health referral and employee passport· Helped · main
Also tried
Doing things in very bite sized chunks· Not saidOnline work support group· Not said
Their words about each treatment
- Occupational health referral and employee passport · Helped
This helped me to rationalise what I could do, and to agree with my line manager adjustments
In context ↗ - Doing things in very bite sized chunks · Not said
I managed to do and learn things in very bite sized chunks during my recovery
In context ↗ - Online work support group · Not said
An online work support group has been a great community
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 9 September 2021 | got Long Covidin 2021 on the 9th of September I got Long CovidIn context ↗ | Not stated |
| first weeks after onset | bed-ridden for a couple of weeks, off work about 7 weeksI was bed-ridden for a couple of weeksIn context ↗ | Severe |
| about 7 weeks after onset | returned to work on reduced hoursI returned to work on reduced hours.In context ↗ | Mild |
| early 2022 | symptoms returned after steady recovery, several weeks off sickMy symptoms returned and I was waylaid again with several weeks off sick again.In context ↗ | Moderate |
| about 2 years after Covid | working with adjustments after five relapses; brain fog, pins and needles, crashes from mental overloadI have had 5 relapses nowIn context ↗ | Mild |
Adverse events
- “I do suffer physical crashes but mine are very much driven by mental / nervous stimulation and overload.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseTinnitus
Their words about their symptoms
- Brain fog
My main symptoms are brain fog, limb pains, pins and needles, occasional tinnitus headaches, chest pains, sensitivity to sound and anxiety.
In context ↗ - Tinnitus
occasional tinnitus headaches
In context ↗ - Post-exertional malaise
I do suffer physical crashes but mine are very much driven by mental / nervous stimulation and overload.
In context ↗ - Flu-like symptoms
semi-permanently ‘fluey’
In context ↗