Bedbound eight months with ME/CFS, much better after supplements and meat-and-rice diet
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 14 months
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
I was diagnosed twice with me/cfs and have been very unwell
In context ↗ - At worst: Severe
I’ve been off work for over a year and was bedbound for 8 months straight
In context ↗ - Now: Much better
I am not back to 100% and am still seeing a immunologist trying to get answers
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
They had 15 months of constant rashes, hives, joint pain and exhaustion, were bedbound for eight months and stopped working. After a gut biome study, a nutritionist put them on supplements and a diet of only meat and rice, which they credit for getting them out of bed, out to the cinema and back typing at a desk within a month. Rashes, hives and joint pain cleared, but confusion and headaches remained and they were not back to 100%.
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What they tried
What they credit
Also tried
Their words about each treatment
- eating only meat and rice · Helped a lot
I have now done over 30 days of eating only meat and rice and the supplements. I cannot believe the difference it has made
In context ↗ - array of supplements · Not said
I also think you are probably right that I am taking some supplements that are unnecessary
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| around January 2024 | constant rashes, hives, burning skin, exhaustion; still working at firstI have been experiencing terrible symptoms for around 15/16 months nowIn context ↗ | Mild | |
| mid-2024 | stopped working, bedbound for eight months straightI’ve been off work for over a year and was bedbound for 8 months straightIn context ↗ | Severe | |
| March 2025 | started meat-and-rice diet plus supplements after gut biome study; out of bed and going outI cannot believe the difference it has made, I have been out of bed for the past 3 weeksIn context ↗ | Moderate | Elimination diets (other) |
| 2025-04-19 | going to the high street, cinema and walks; still bad confusion and headachesI still get really bad confusion and headaches however I have seen progress after changing my dietIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I was getting constant rashes, hives and swelling in my skin
In context ↗ - Neuropathy & tingling
I felt like my skin was on fire
In context ↗ - Flu-like symptoms
I then started getting swelling in my legs and in my lymph nodes
In context ↗ - Pain & fibromyalgia
I no longer have pain in my joints
In context ↗ - Brain fog
I still get really bad confusion and headaches
In context ↗ - Anxiety & low mood
feeling hopeless and extremely stressed about the decline in my health
In context ↗
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