ME/CFS fatigue, brain fog and pain, somewhat better with medical cannabis and LDN
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2016
In their words
- Condition: ME/CFS
Medical marijuana has saved my life with cfs
In context ↗ - At worst: Mild
I'm a CEO with M.E and it's impacted me drastically for sure. Not getting the CEO salary as much as before but I'm slowly working my way back up there.
In context ↗ - Now: Somewhat better
The last few days I've felt kinda meh and unable to get out of bed easily. But once I'm out I still feel way better than before.
In context ↗
Read from 38 of their posts and comments; links to the 12 this page draws on
Summary
Working as a CEO despite ME/CFS, she described fatigue, brain fog, neuropathy, muscle spasms and pain, plus insomnia and depression. She credited medical cannabis, low-dose naltrexone (2.5 mg) and B12 injections; a 1 mg cyanocobalamin shot in Las Vegas briefly made her feel fully healthy, but the effect faded within days and LDN caused insomnia. Cannabis cost about $10 a gram.
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What they tried
What they credit
Also tried
Their words about each treatment
- Medical marijuana (cannabis) · Helped a lot
Medical marijuana saved my life for both fatigue and the brain fog
In context ↗ - Mind Your Mitochondria diet · Not said
My strategy has been to eat as healthy as possible using the tips outlined in Mind your Mitochondria.
In context ↗ - electrolytes · Not said
I also drink tons of electrolytes for energy.
In context ↗ - resting a week before going out · Helped
If I know I want to go out with friends, I usually rest a crap ton the entire week to "store" enough spoons to go out.
In context ↗ - nortriptyline · Not said
My neurologist recommend Medical Marijuana as it can help with neuropathy + my nitropytyline.
In context ↗ - Low dose naltrexone (LDN) · Helped a lot
LDN is a miracle plus cannabis cbd tincture daily
In context ↗ - B12 injections (cyanocobalamin) · Helped a lot
That was the equivalent to being 100% healthy.
In context ↗ - Estrogen · No change
Now my hrt doesn't really affect my CFS
In context ↗ - Spironolactone · Worse
in the beginning spironolactone caused very dangerous low blood pressure and I had to stop for many months
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | ME/CFS while running a companyIronically I'm a CEO with M.E and it's impacted me drastically for sure.In context ↗ | Mild | |
| 2015-07-23 | medical cannabis eased pain, spasms, fatigue and brain fogMedical marijuana has saved my life with cfs.In context ↗ | Mild | |
| 2016-01-22 | 1 mg B12 injection in Las Vegas, briefly felt fully healthyThat was the equivalent to being 100% healthy.In context ↗ | Near normal | Vitamin B12 |
| 2016-01-22 | B12 effect wore off, back to struggling out of bedThe last few days I've felt kinda meh and unable to get out of bed easily.In context ↗ | Mild | |
| 2016-01-28 | stable energy on LDN but needs indica cannabis to sleepNaltrexone gives me stable energy but it's not noticeable enough .In context ↗ | Mild | Low-dose naltrexone |
Adverse events
- Low-dose naltrexone“It's 215am and I have horrible insomnia on LDN too but if I get desperate I'll use some indica cannabis to taper off .” In context ↗ Insomnia from treatment
- Low-dose naltrexone“For some reason it makes sleeping very hard unless i smoke indica cannabis” In context ↗ Insomnia from treatment
- Spironolactone“in the beginning spironolactone caused very dangerous low blood pressure and I had to stop for many months until my doctors could all work together to solve it . I was fainting for no reason” In context ↗ Low blood pressure or fainting
Symptoms mentioned
Their words about their symptoms
- Brain fog
Medical marijuana saved my life for both fatigue and the brain fog
In context ↗ - Neuropathy & tingling
Can confirm that this works 100% for my neuropathy
In context ↗ - Pain & fibromyalgia
For the neuropathy and pain I use high cbd strains
In context ↗ - Sleep problems
It's 215am and I have horrible insomnia on LDN too
In context ↗ - Anxiety & low mood
Honestly Medical marijuana has helped me with a TON of symptoms including the depression
In context ↗ - POTS & dysautonomia
spironolactone caused very dangerous low blood pressure ... I was fainting for no reason
In context ↗
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