Bedbound with long COVID at worst, now much better after diet changes and gentle exercise
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2026
In their words
- Condition: Long COVID
Been to multiple different doctors who eventually interpreted that I have LC.
In context ↗ - At worst: Severe
it took a lot of work to move these symptoms from being bed bound to walking around like this
In context ↗ - Now: Much better
my body has done a 180 since Covid ... Now I deal with extreme dysautonomia and vascular symptoms.
- Began after: COVID
I came down with COVID a bit later than the pack, but when I got it, I knew I got it bad.
In context ↗
Read from 14 of their posts and comments; links to the 13 this page draws on
Summary
A 28-year-old woman developed long COVID after a COVID infection, with visible veins, visual migraines, palpitations, tingling and light sensitivity. She was bed bound at her worst, then built up with diet changes, breathing exercises, physical therapy and gentle Zone 2 exercise, saying her body had done a 180. By August 2026 she was walking and exercising but still had extreme dysautonomia and vascular symptoms.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- box breathing / breath work · Helped
Consider doing breath work (box breathing) ... That has helped with some of the cardiac symptoms I was experiencing
In context ↗ - blowing up balloons (diaphragmatic exercises) · Helped
One thing I also saw that I personally tried, was blowing up balloons, repeatedly, and letting them go.
In context ↗ - electrolytes · Helped
Electrolytes sort of help, but not really.
In context ↗ - accupressure mat · Helped
You may also try a good quality accupressure mat, which really does help before bed.
In context ↗ - bentonite clay · Helped
I have tried bentonite clay, and as far as I know it does have good detox results (I had much more regular BMs and my food felt more nourishing)
In context ↗ - Zeolites · Helped
I also purchased a more purified version of Zeolites and I do like how I feel when I use it.
In context ↗ - Zone 2 conditioning · Helped
what has helped with my rapid heart rate is Zone 2 conditioning ... Exercise has calmed my heart so much
In context ↗ - strict anti inflammatory diet · Helped
been on a strict anti inflammatory diet with a focus on gaining weight by healthy foods
In context ↗ - cold showers / cooling down · Helped
Cooling definitely helps. Cold shower effects last about 30 mins.
In context ↗ - dry brushing · Helped
Dry brushing has been helping a little for a very temporary fix
In context ↗ - 48 hour fast · Not said
I did a 48 hour fast once and swear I was hearing colors
In context ↗ - physical therapy exercises for the neck · Helped
I did 3 physical therapy exercises a day religiously until it finally stopped. The issue was neck strength.
In context ↗
Approaches: Diet · Exercise and activity · Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | came down with COVIDI came down with COVID a bit later than the pack, but when I got it, I knew I got it bad.In context ↗ | Not stated |
| — | bed bound at her worstit took a lot of work to move these symptoms from being bed bound to walking around like thisIn context ↗ | Severe |
| 2026-03-12 | walking around and exercising again after diet and exercise changesmy body has done a 180 since CovidIn context ↗ | Mild |
| 2026-08-25 | still troubled by dysautonomia and vascular symptomsNow I deal with extreme dysautonomia and vascular symptoms.In context ↗ | Mild |
Adverse events
- Extended water fasting (3+ days)“I did a 48 hour fast once and swear I was hearing colors” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I also had some pain in my shoulder blade and tingling down my hands and hips
In context ↗ - Heart symptoms & palpitations
when I feel symptoms like my heart beating hard or unstable breathing
In context ↗ - Breathlessness
unstable breathing
In context ↗ - POTS & dysautonomia
Now I deal with extreme dysautonomia and vascular symptoms.
In context ↗ - Headaches & migraine
I started getting visual migraines that I can only describe as an acid trip
In context ↗ - Anxiety & low mood
My anxiety grew and grew.
In context ↗ - Light & noise sensitivity
my light sensitivity was so bad I couldn’t drive
In context ↗ - Pain & fibromyalgia
I also had some pain in my shoulder blade
In context ↗
Ask Miruvor AI
Similar stories
-
Mostly housebound with long COVID, somewhat better with pacing and nervous-system work
After a mid-2022 COVID infection Swan 25745 had long COVID and improved to roughly 80-90% of their old function, then crashed after a stressful event in February 2024. A third infection in mid-2024 led to a bad crash and months of being mostly housebound; by…
-
Bedbound with long COVID at worst, now nearly back to normal after time and diet
Ill from mid-2021, this Reddit user was largely bedbound at worst with severe brain fog, head pressure and constant fight-or-flight feelings. They credited time plus an anti-inflammatory/keto diet, anti-inflammatory supplements, exercise, meditation,…
-
Long COVID, unable to do anything at first, now about 70% better after inosine pranobex
Flint 87280 fell ill with long COVID in January 2023 and could not do anything at first, slowly reaching six hours of home work a day. Inosine pranobex, started about 1.5 years in, cleared their physical PEM within two weeks and lifted them to roughly 70%…
-
Daily fatigue, brain fog and PEM with ME/CFS, now recovered after polyvagal work
Heron 68608 became ill, attributing onset to stress, with daily fatigue, brain fog, PEM, IBS, pain and anxiety. Low-to-moderate intensity exercise raised their baseline a few times while severe emotional stress caused regressions. From about 2021 their…