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Long COVID Severe → much better

Bedbound with long COVID at worst, now much better after diet changes and gentle exercise

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Aug 2026
In their words
  • Condition: Long COVIDBeen to multiple different doctors who eventually interpreted that I have LC. In context ↗
  • At worst: Severeit took a lot of work to move these symptoms from being bed bound to walking around like this In context ↗
  • Now: Much bettermy body has done a 180 since Covid ... Now I deal with extreme dysautonomia and vascular symptoms.
  • Began after: COVIDI came down with COVID a bit later than the pack, but when I got it, I knew I got it bad. In context ↗
Read from 14 of their posts and comments; links to the 13 this page draws on

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Summary

A 28-year-old woman developed long COVID after a COVID infection, with visible veins, visual migraines, palpitations, tingling and light sensitivity. She was bed bound at her worst, then built up with diet changes, breathing exercises, physical therapy and gentle Zone 2 exercise, saying her body had done a 180. By August 2026 she was walking and exercising but still had extreme dysautonomia and vascular symptoms.

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What they tried

Their words about each treatment
  • box breathing / breath work · HelpedConsider doing breath work (box breathing) ... That has helped with some of the cardiac symptoms I was experiencing In context ↗
  • blowing up balloons (diaphragmatic exercises) · HelpedOne thing I also saw that I personally tried, was blowing up balloons, repeatedly, and letting them go. In context ↗
  • electrolytes · HelpedElectrolytes sort of help, but not really. In context ↗
  • accupressure mat · HelpedYou may also try a good quality accupressure mat, which really does help before bed. In context ↗
  • bentonite clay · HelpedI have tried bentonite clay, and as far as I know it does have good detox results (I had much more regular BMs and my food felt more nourishing) In context ↗
  • Zeolites · HelpedI also purchased a more purified version of Zeolites and I do like how I feel when I use it. In context ↗
  • Zone 2 conditioning · Helpedwhat has helped with my rapid heart rate is Zone 2 conditioning ... Exercise has calmed my heart so much In context ↗
  • strict anti inflammatory diet · Helpedbeen on a strict anti inflammatory diet with a focus on gaining weight by healthy foods In context ↗
  • cold showers / cooling down · HelpedCooling definitely helps. Cold shower effects last about 30 mins. In context ↗
  • dry brushing · HelpedDry brushing has been helping a little for a very temporary fix In context ↗
  • 48 hour fast · Not saidI did a 48 hour fast once and swear I was hearing colors In context ↗
  • physical therapy exercises for the neck · HelpedI did 3 physical therapy exercises a day religiously until it finally stopped. The issue was neck strength. In context ↗

Approaches: Diet · Exercise and activity · Mind-body practices

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—came down with COVIDI came down with COVID a bit later than the pack, but when I got it, I knew I got it bad. In context ↗Not stated
—bed bound at her worstit took a lot of work to move these symptoms from being bed bound to walking around like this In context ↗Severe
2026-03-12walking around and exercising again after diet and exercise changesmy body has done a 180 since Covid In context ↗Mild
2026-08-25still troubled by dysautonomia and vascular symptomsNow I deal with extreme dysautonomia and vascular symptoms. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingI also had some pain in my shoulder blade and tingling down my hands and hips In context ↗
  • Heart symptoms & palpitationswhen I feel symptoms like my heart beating hard or unstable breathing In context ↗
  • Breathlessnessunstable breathing In context ↗
  • POTS & dysautonomiaNow I deal with extreme dysautonomia and vascular symptoms. In context ↗
  • Headaches & migraineI started getting visual migraines that I can only describe as an acid trip In context ↗
  • Anxiety & low moodMy anxiety grew and grew. In context ↗
  • Light & noise sensitivitymy light sensitivity was so bad I couldn’t drive In context ↗
  • Pain & fibromyalgiaI also had some pain in my shoulder blade In context ↗

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