Jenny's Chronic Fatigue Syndrome Recovery: From Bedbound to Brilliant!
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving
- 2 years
- Published
- No date given
In their words
- Condition: ME/CFS
she fell very ill with mecfs or chronic fatigue syndrome
Watch the video ↗From the video’s captions - At worst: Severe
at my worst it was horrendous you know it was very very severe
Watch the video ↗From the video’s captions - Now: Recovered
I'm not living life of any restrictions at all
Watch the video ↗From the video’s captions - Began after: COVID
getting a a virus what we think is covered was covered
Summary
Jenny Jarman fell ill with ME/CFS and POTS symptoms after a virus, was severely restricted and at times bedbound for about two years. Strict pacing, diets, supplements, massage and acupuncture did not help or made her worse; brain retraining left her more stressed. She credits Rebecca Tolin's recovery interview, somatic tracking, Sarno's books and psychotherapy. She now lives without restrictions and is returning to work.
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What they tried
What they credit
Also tried
Their words about each treatment
- very strict pacing · Worse
that actually disabled me further
Watch the video ↗From the video’s captions - antihistamine diet · No change
I tried really like extreme diets I tried this antihistamine diet
Watch the video ↗From the video’s captions - extreme diets · No change
I tried really like extreme diets
Watch the video ↗From the video’s captions - supplements · No change
I did supplements I probably did all sorts of things
Watch the video ↗From the video’s captions - massage · Worse
I tried like you know more holistic things like massage and um acupuncture but they just threw my system into a crash
Watch the video ↗From the video’s captions - allopathic remedies from doctors · No change
that didn't help either yeah
Watch the video ↗From the video’s captions - psychotherapist · Helped
the Psychotherapy was amazing
Watch the video ↗From the video’s captions - a brain retraining program · Worse
that was kind of making me more um stressed and anxious
Watch the video ↗From the video’s captions - Rebecca Tolin's recovery interview, coaching and Be Your Own Medicine course · Helped a lot
that interview with you just changed everything for me
Watch the video ↗From the video’s captions - somatic tracking, Sarno's books and daily reminders · Helped a lot
I lay down on my sofa and I did the opposite of what I had been doing for the whole two years
Watch the video ↗From the video’s captions - getting out and living · Helped
I just got out there and lived
Watch the video ↗From the video’s captions - meditating · Not said
just looking at the wall or out the window meditating
Watch the video ↗From the video’s captions
Approaches: CBT & mindset · Exercise and activity · Mind-body practices · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | Fell ill after a virus, likely COVID, during a stressful time after having her childrenbeing in a state of stress and butterfly and then getting a a virus what we think is covered was coveredWatch the video ↗From the video’s captions | Not stated | |
| — | Mostly in bed after strict pacing; sensitive to noise and light, showering a major eventthere were times when I was just in bed and um everything became such a threat to me noise lightWatch the video ↗From the video’s captions | Severe | |
| after two years | Rebecca Tolin's interview and somatic tracking; stopped seeing symptoms as dangerousI lay down on my sofa and I did the opposite of what I had been doing for the whole two years I felt my symptoms I felt my emotionsWatch the video ↗From the video’s captions | Not stated | Rebecca Tolin / Be Your Own Medicine |
| — | Holiday abroad; needed wheelchair assistance out, walked the whole airport backon the way back we've had a nightfly and I walked through the whole airport no wheelchair fineWatch the video ↗From the video’s captions | Moderate | Everyday exercise and activity |
| — | Living without restrictions, travelling and starting a new jobI'm not living life of any restrictions at all I'm doing what I want to doWatch the video ↗From the video’s captions | Recovered |
Adverse events
- Pacing and the energy envelope“that actually disabled me further” Watch the video ↗From the video’s captions Made symptoms worse
- “I tried like you know more holistic things like massage and um acupuncture but they just threw my system into a crash” Watch the video ↗From the video’s captions Made symptoms worse
- CBT and psychotherapy“then it would make me really unwell” Watch the video ↗From the video’s captions Made symptoms worse
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)“that was kind of making me more um stressed and anxious” Watch the video ↗From the video’s captions Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I'd been very like up and down or they've been able to get back up and then I would crash down
Watch the video ↗From the video’s captions - Brain fog
I had brain fog
Watch the video ↗From the video’s captions - POTS & dysautonomia
she also had a lot of pot symptoms
Watch the video ↗From the video’s captions - Light & noise sensitivity
everything became such a threat to me noise light
Watch the video ↗From the video’s captions - Anxiety & low mood
I wouldn't say I have anxiety at all anymore
Watch the video ↗From the video’s captions
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