Long COVID, unable to function day by day, now much better with rest and pacing
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Dec 2025
In their words
- Condition: Long COVID
Had Long Covid for 1.5 years now.
In context ↗ - At worst: Moderate
I could not function day by day
In context ↗ - Now: Much better
So now I'm on the path to recovery. Still pacing but I'm in control now.
In context ↗ - Began after: COVID
Had Long Covid for 1.5 years now.
In context ↗
Summary
Breeze 53253 had long COVID for about 1.5 years, with light fatigue, joint and tendon pain, intense calf pain, nerve zingers and blood pooling in their legs. After 18 months they could not function day by day. They stopped everything, stayed home for weeks doing very little and resting, then rebuilt activity gradually with pacing. Months later they reported being on the path to recovery, still pacing but in control.
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What they tried
What they credit
Also tried
Their words about each treatment
- stretching and flossing · Helped
I find that stretching and flossing it helps a bit but ultimately nothing can stop the pain
In context ↗ - doing nothing · Helped a lot
I just stopped. Did nothing. Didn't leave the house for weeks and just did light walks around my flat
In context ↗ - pacing · Helped a lot
I gradually built up day by day pacing and never going over my fatigue limit
In context ↗
Approaches: Pacing · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID onsetHad Long Covid for 1.5 years now.In context ↗ | Mild | |
| 2025-05-30 | slipping, could not function day by dayI was 18 months into LC and gradually slipping into a life where I could not function day by day.In context ↗ | Moderate | |
| 2025-12-27 | full rest then gradual rebuilding, on the path to recoverySo now I'm on the path to recovery. Still pacing but I'm in control now.In context ↗ | Mild | Radical rest |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Main symptoms are light fatigue, joint and tendon pain and intense calf pain.
In context ↗ - POTS & dysautonomia
blood pooling in my legs
In context ↗ - Brain fog
I could barely concentrate for 20 mins without my body fatiguing
In context ↗
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