Long COVID breathlessness and tingling, nearly back to normal after a vaccine and time
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 1 year
- Last post
- Jul 2025
In their words
- Condition: Long COVID
We got Covid March 2020, then long Covid.
In context ↗ - Now: Near normal
It's been a long road and I'm 95% recovered. But occasionally there's something going on.
In context ↗ - Began after: COVID
We got Covid March 2020, then long Covid.
In context ↗
Read from 14 of their posts and comments; links to the 10 this page draws on
Summary
Caught COVID in March 2020 and developed long COVID with tingling, smell changes, breathlessness, hair loss and sinus pain. A first vaccine dose was credited with a 90% improvement; a second Moderna shot brought tingling back, and neck lymph nodes stayed swollen for over a year after a second dose. Diet, exercise, supplements, a CPAP and time also helped. By 2024 they were 95% recovered, with occasional fight-or-flight and lingering neurological issues.
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What they tried
Also tried
Their words about each treatment
- cleaned up my diet · Helped
There's no one magic bullet but many. When asked what worked I don't know, but something did and I am so much better now. I cleaned up my diet
In context ↗ - exercise · Helped
I eat really well, exercise a lot and take a mound of supplements.
In context ↗ - lots of supplements · Helped
added exercise and lots of supplements ... something did and I am so much better now
In context ↗ - 1st vax · Helped a lot
1st vax cured long covid 90%. Still have a few issues.
In context ↗ - singing lessons · Not said
Started singing lessons, eye exercises and other things.
In context ↗ - prescription drugs · Not said
I do take prescription drugs for things I didn't have pre Covid
In context ↗ - B12 supplements · Helped
She said to take B12 supplements and the symptom would gradually go. I'm still taking the B12 and I still have neurological issues, but not that one.
In context ↗ - CPAP · Helped
the sinus problem went away a year ago when I started using a CPAP
In context ↗ - massage · Helped
Somehow I realized that if I massaged the back of my head, my sinus issue cleared up.
In context ↗ - inhaler · Not said
I don't even use my inhaler any more.
In context ↗ - time · Helped a lot
Time has been the biggest healer. The further I get from 2020 the more things improve.
In context ↗
Approaches: Exercise and activity · Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID infection followed by long COVIDWe got Covid March 2020, then long Covid.In context ↗ | Not stated | |
| 2021 | first vaccine dose gave about 90% improvement1st vax cured long covid 90%. Still have a few issues.In context ↗ | Near normal | COVID vaccination as treatment |
| November 2022 | second Moderna dose; tingling returned and neck lymph nodes swelledI got my second dose of Covid in November 2022 ... The lymph nodes in my neck swelled up and have stayed like that.In context ↗ | Not stated | |
| August 2023 | over 90% better after diet, exercise, supplements and other changesI'm over 90% better.In context ↗ | Near normal | |
| March 2024 | 95% recoveredIt's been a long road and I'm 95% recovered.In context ↗ | Near normal | |
| November 2024 | breathing trouble gone, no longer needs inhalernot everything has gone, but everything is very slowly improvingIn context ↗ | Near normal | |
| July 2025 | still slowly improving with timeTime has been the biggest healer. The further I get from 2020 the more things improve.In context ↗ | Near normal | Time and spontaneous remission |
Adverse events
- COVID vaccination as treatment“I had the moderna vaccine, a month after that the second moderna vaccine and I got the symptoms back again” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I would get tingling all over my body
In context ↗ - Loss of smell or taste
I got a hyperactive sense of smell and phantosmia
In context ↗ - Hair loss
I did lose some hair, but not a lot.
In context ↗ - Breathlessness
I used to have trouble breathing. I don't even use my inhaler any more.
In context ↗ - Headaches & migraine
I was just very blocked with lots of pain at the back of the head.
In context ↗ - Anxiety & low mood
I got the fight or flight and couldn't relax
In context ↗ - Brain fog
sometimes I worry my brain isn't working properly
In context ↗
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