ME/CFS
Mild → no benefitIll for 32 years
ME/CFS with POTS and presyncope, no better after midodrine and salt tablets
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 32 years
- Last post
- Jul 2022
In their words
- Condition: ME/CFS
I've had ME/CFS, along with NMH (Neurally Mediated Hypotension) and POTS, since 1990.
In context ↗ - At worst: Mild
I used to end up sitting on the ground/floor whenever I couldn't find a seat.
In context ↗ - Now: No benefit
He prescribes medication to help with my symptoms.
In context ↗
Summary
Since 1990 the user has had ME/CFS with neurally mediated hypotension and POTS. Presyncope brought nausea, tachycardia, cold sweat and an inability to think or speak, and they carried a folding cane/seat so they could sit down. They fainted twice during tilt table tests and once at night. Midodrine, florinef and salt tablets helped, and a cardiologist had prescribed medication since 1995.
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What they tried
Their words about each treatment
- midodrine · Helped
what helps me (midodrine, florinef, salt tablets, etc.)
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 1990 | ME/CFS with NMH and POTS beganI've had ME/CFS, along with NMH (Neurally Mediated Hypotension) and POTS, since 1990.In context ↗ | Not stated |
| 2022-07-09 | still has presyncope; uses a folding cane/seat to sit downBefore I got my portable folding cane/seat I used to end up sitting on the ground/floor whenever I couldn't find a seat.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have ME/CFS/SEID and also Orthostatic Intolerance (OI), both NMH (drop in BP) and POTS (increase in heart rate).
In context ↗ - Heart symptoms & palpitations
My other symptoms are usually tachycardia
In context ↗ - Brain fog
can't think, can't speak properly (can't form full sentences or answer questions)
In context ↗ - Gut problems
Nausea is a common pre-syncope symptom for me.
In context ↗