ME/CFS
Mild → no benefitIll for 2 years
ME/CFS with exhaustion, brain fog and exercise intolerance, no benefit from walking more
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 2 years
- Last post
- Oct 2022
In their words
- Condition: ME/CFS
for a while now I've been suspecting that I may have CFS
In context ↗ - At worst: Mild
If I walk beyond 2-3 hours in a day I end up with leg pain, extreme tiredness, and sometimes feeling sickly and stiff that goes on for 2-3 days
In context ↗ - Now: No benefit
I've already tried walking more to increase stamina but it's the same every time
In context ↗ - Began after: nothing they could name
It all started when a couple of years ago, I noticed how I had been starting to become extremely tired no matter how much I slept.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 16-year-old had been increasingly exhausted for about two years, with unrefreshing sleep, exercise intolerance, constant headaches, nausea, photosensitivity and brain fog, and asked whether it could be CFS. Walking more than half an hour to an hour left him exhausted, and 5-10 minutes of exercise caused many hours of fatigue and lightheadedness; stairs made him breathless, sore and gave him a headache. He had tried walking more without benefit and was awaiting a doctor.
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What they tried
Their words about each treatment
- methylphenidate · Helped
Even my methylphenidate doesn't touch this (And I know my methylphenidate works as it helps my memory and concentration, allowing me to focus)
In context ↗ - walking more to increase stamina · No change
I've already tried walking more to increase stamina but it's the same every time
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| a couple of years ago | began feeling extremely tired no matter how much he sleptIt all started when a couple of years ago, I noticed how I had been starting to become extremely tired no matter how much I slept.In context ↗ | Mild |
| 2022-10-16 | still exhausted, with constant headaches, nausea, photosensitivity and brain fogI have constant headaches and nausea, as well as a photosensitivity.In context ↗ | Mild |
Symptoms mentioned
Brain fogBreathlessnessGut problemsHeadaches & migraineLight & noise sensitivityPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
If I walk beyond 2-3 hours in a day I end up with leg pain, extreme tiredness, and sometimes feeling sickly and stiff that goes on for 2-3 days.
In context ↗ - Brain fog
I also have very bad brain fog
In context ↗ - Sleep problems
extremely tired no matter how much I slept
In context ↗ - Headaches & migraine
I have constant headaches and nausea
In context ↗ - Light & noise sensitivity
as well as a photosensitivity
In context ↗ - Breathlessness
Even going up a staircase I always end up out of breath, sore, and gain a headache.
In context ↗ - Pain & fibromyalgia
I end up with leg pain
In context ↗ - POTS & dysautonomia
I end up becoming lightheaded and out of breath.
In context ↗