ME/CFS
RelapsedIll 1 year before improving or writing
Most days resting in bed or on couch with ME/CFS-like symptoms, slight gains then a relapse
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 1 year
- Last post
- Jan 2026
In their words
- Condition: ME/CFS
I have been dealing with symptoms of ME/CFS for the past 3 months that occured after a viral infection
In context ↗ - Now: Relapsed
I feel like ive lost all my gains too ... My latest crash that decreased my baseline, has lasted for 3 months.
- Began after: another virus
About 8 weeks ago I fell sick with what I believed was the flu
In context ↗
Read from 24 of their posts and comments; links to the 17 this page draws on
Summary
Tern 92110 fell ill in February 2025 with a flu-like illness, then strep throat and a bladder infection, and developed ME/CFS-like symptoms with PEM, constant pain and sore throat. They spent most days resting in bed or on the couch. They tried LDN at 0.1 mg but it triggered PEM, and reported only slight gains from ubiquinol, D-ribose, electrolytes, PEA, magnesium, pregabalin and diet changes. A later crash cut their baseline.
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What they tried
Also tried
antibiotics· Helpedmagnesium· HelpedPEA· HelpedD Ribrose· Helpedelectrolytes· Helpedsamsung Galaxy watch 6· Helpedibuprofen· Helpedpanadol· Helpedmeditation· Helpedbaking soda· Helpedgluten free, anti inflammatory diet· Helpedgluten free, anti inflammatory diet· Helpedprobiotics, yakult and yoghurt· Helpedbatido de proteínas (protein shake)· Helpedsertraline· No changecarbamazepine (Tegretol)· WorseLDN· Worsebenagene 500mg oxaloacetate tablets· Worsewalking the dogs and doing more· Much worsevit c· Not saidb12· Not saidmega b· Not saidturmeric· Not saidking krill· Not said
Their words about each treatment
- carbamazepine (Tegretol) · Worse
when I take my medications in the morning (carbamazepine and sertraline) it all but knocks me out for an hour or so
In context ↗ - sertraline · No change
I already take anti-epilepsy meds (300mg carbamazepine) and anti-anxiety meds (100mg sertraline) unfortunately they dont seam to do much
In context ↗ - antibiotics · Helped
I was still feeling unwell with fatigue but the aches subsided
In context ↗ - walking the dogs and doing more · Much worse
After a couple of days of this I was walking the dogs one day and I started feeling like sh*t so I immediately came home and went to bed. Since then I have been going down hill slowly.
In context ↗ - vit c · Not said
vitamins (vit c, b12, mega b, turmeric, king krill, magnesium, PEA)
In context ↗ - magnesium · Helped
glicinato de magnesio (dolores musculares y sueño) ... son las únicas cosas que hacen una ligera diferencia
In context ↗ - PEA · Helped
PEA (dolor y PEM) ... son las únicas cosas que hacen una ligera diferencia
In context ↗ - resting on the couch and pacing · Helped
After resting for 3 weeks on the couch, no shopping or house work, I was starting to feel like I was improving
In context ↗ - D Ribrose · Helped
Have you tried D Ribrose? It's given me a little extra boost in energy. I have it as a powder in my electrolyte drink daily.
In context ↗ - electrolytes · Helped
electrolitos ... son las únicas cosas que hacen una ligera diferencia
In context ↗ - samsung Galaxy watch 6 · Helped
I used it for about a month and I found it helpful with tracking my heart rate
In context ↗ - LDN · Worse
Next day I decided to take it in the morning and I had PEM. It made my pain so much worse and fatigue was worse as well.
In context ↗ - ibuprofen · Helped
I take as much ibuprofen and panadol allowed during the day but it only slightly takes the sting away from the pain.
In context ↗ - meditation · Helped
I practise meditation for pain daily in bed and it dose help
In context ↗ - baking soda · Helped
I've been having half a teaspoon of baking soda with a glass of water when I feel PEM coming on or before i do something that may trigger PEM and seams to be helping me.
In context ↗ - gluten free, anti inflammatory diet · Helped
I have modified my diet by eating gluten free ... and have seen some improvements in pain and fatigue
In context ↗ - probiotics, yakult and yoghurt · Helped
taking probiotics/drinking yakult and eating yoghurt daily ... have seen some improvements in pain and fatigue
In context ↗ - pregablin · Helped
pregablin ... son las únicas cosas que hacen una ligera diferencia
In context ↗ - ubiquinol · Helped
Ubiquinol ... son las únicas cosas que hacen una ligera diferencia
In context ↗ - batido de proteínas (protein shake) · Helped
batido de proteínas ... son las únicas cosas que hacen una ligera diferencia
In context ↗ - benagene 500mg oxaloacetate tablets · Worse
I've been using benagene 500mg oxaloacetate tablets once a day and its been giving me a bit of a boost in energy but after a few days of use i would get stomach pain and nausea.
In context ↗
Approaches: Other drugs and medicines · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2025 | fell ill with a flu-like illness (fatigue, body aches, dry cough)About 8 weeks ago I fell sick with what I believed was the fluIn context ↗ | Mild |
| April 2025 | crashed while walking the dogs and declined from then onI was walking the dogs one day and I started feeling like sh*t so I immediately came home and went to bed. Since then I have been going down hill slowly.In context ↗ | Moderate |
| September 2025 | some improvement in pain and fatigue after diet changes and pregabalinhave seen some improvements in pain and fatigue (but did start some other things during that time like pregablin) so hard to tellIn context ↗ | Moderate |
| October 2025 | big crash that lowered her baselineMy latest crash that decreased my baseline, has lasted for 3 months.In context ↗ | Severe |
| January 2026 | a little more energy than during the crash; oxaloacetate gave a small energy boost but upset her stomachThis is the first time since then that I've had a little more energy.In context ↗ | Moderate |
Adverse events
- “Due to the chemotherapy being too strong for my body, it wiped out my white blood cell count which ended up resulting in sepsis” In context ↗ Blood count problems
- Everyday exercise and activity“After a couple of days of this I was walking the dogs one day and I started feeling like sh*t so I immediately came home and went to bed.” In context ↗ Made symptoms worse
- Carbamazepine (Tegretol), Sertraline (Zoloft)“when I take my medications in the morning (carbamazepine and sertraline) it all but knocks me out for an hour or so” In context ↗ Side effects
- Carbamazepine (Tegretol)“It's also a bitch to start on in my opinion, it made me feel like hell until my body got used to it.” In context ↗ Side effects
- Carbamazepine (Tegretol)“Ive been having dizziness, veritgo (when watching TV and playing video games) and increased pain and tingling.” In context ↗ Withdrawal problems
- Low-dose naltrexone“I had a tingly feeling in my jaw, my concentration was a little off and I felt a little out of it” In context ↗ Side effects
- Low-dose naltrexone“It made my pain so much worse and fatigue was worse as well.” In context ↗ Made symptoms worse
- Oxaloacetate“after a few days of use i would get stomach pain and nausea” In context ↗ Gut side effects
- Oxaloacetate“After a few hours ill get vertigo and my stomach will be sensitive to food for a couple of days after.” In context ↗ Other
Symptoms mentioned
Anxiety & low moodFlu-like symptomsHeadaches & migraineNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
I've been in the push crash cycle for months
In context ↗ - Pain & fibromyalgia
I am in pain 24/7 with little days of respite inbetween.
In context ↗ - Flu-like symptoms
more pain (aching, muscle soreness, migrating pain), more fatigue and the dreaded tender lymph nodes
In context ↗ - Headaches & migraine
my symptoms are PEM, joint and muscle aches, sore throat, head aches, malaise and extreme fatigue
In context ↗ - Anxiety & low mood
I have diagnosed anxiety to which I have been taking 100mg of sertraline for.
In context ↗ - POTS & dysautonomia
Ive been having dizziness, veritgo (when watching TV and playing video games) and increased pain and tingling.
In context ↗ - Neuropathy & tingling
increased pain and tingling
In context ↗
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